The Treatment Plan.
Posted Jan 22, 2009 4:56pm
Today at 9:30 am Dr. Bruggers (Oncologist) came and talked to me and my family about where we go from here knowing what kind of cancer it is and exactly what to expect with his Chemo Treatment plan. The cancer Travyn has is very rare so they have asked my permission to include Trayvn in a study for this rare cancer in the brain called AT/RT "Atypical Teratoid/Rhabdoid Tumor" AT/RT is a type of cancer that occurs in the brain, which is part of the central nervous system. It is a cancer found in an area of the back part of the brain called the Posterior Fossa. These Tumors grow quickly and can spread to other areas of the central nervous system. This means it can spread to other areas of the Brain and around spine. BUT TRAVYNS HAS NOT AND HOPEFULLY WILL NOT SPREAD! There are Three parts to treat this cancer. 1. Surgery to remove Tumor (which was already done) 2. Chemotherapy (Anti-Cancer drug treatment) 3. Radiation. Since Travyn is only 4 months they want to hold off on the radiation unless absoultly neccessary. Im all for Travyn to be a participant in this clinical study so that Primary Childrens can learn more about this RARE Cancer. If Travyn can help these doctors find a succussful cure to help other babies to fight this awful disease this is what I want and I KNOW THAT TRAVYN WOULD WANT THAT TOO!!!
On Monday Travyn will have surgery so they can Put in his "Central Line" Which will come out of the main heart artery that will have a line coming out of his chest. Thats where the Chemo will be injected into his body. While he is sedated they will also perform a Spinal Tap and collect some Bone Marrow. A Spinal Tap is a procedure performed when a doctor needs to look at the "Cerebrospinal Fluid" also known as Spinal Fluid. The reason they want to perform this procedure is to see if there is any tumor in his spine and by collecting the bone marrow they can see if it has spread anywhere else in his bones.
The Treatment Plan:The Treastment Plan involves Chemo and Stem Cell Rescue procedures. Consolidaton Chemotherapy will be performed in 3 cycles of 7 days and a MRI will be performed after to see if the Chemo is doing what its suppose to do, WHICH IT WILL FOR MY LITTLE BOY!!!! They want to start his treatment in 3 weeks so he can heal as much as possible.
I feel very overwhelmed with all this news and Im just trying to process it all. But my attitude is very Positive and Im staying strong...I HAVE HOPE!!!
Thanks for all your Prayers... PLEASE KEEP PRAYING FOR MY BABY BOY THAT HE WILL FIGHT THIS AWFUL, NASTY DISEASE AND WILL GET THROUGH THIS JUST FINE!!
I LOVE YOU ALL SO MUCH. THANKS FOR ALL YOUR MESSGAES. THEY REALLY GIVE ME ENCOURAGMENT AND KEEP ME STRONG. I COULD NOT DO THIS WITHOUT ALL OF YOU!
REMEMBER EVERYONE!!!Travyn has Cancer. BUT CANCER DOES NOT HAVE HIM!!!!!!!!!