Still waiting to start Chemo.
Posted Jan 29, 2009 5:17pm
Today is Thursday 1/29/09. Travyn is doing so good. We went on our first walk last night around the unit and I could tell Travyn loved every minute of it. He also pulled out his feeding tube the other night which we got a kick out of. It didn't hurt him at all. My dad said he looked over and Travyn had it wrapped around his hand like "ha ha I got it out" lol..I think he just wanted a bottle. :)
We have been patiently waiting to begin his first cycle of Chemo Therapy. It is the Neuro Surgeons decision on when we start his Chemo. They want to make sure my little boy is completely up to par. His incision on the back of his head has been leaking fluid a little and they had to put an extra stitch in and also used medical super glue to see if that would help it to quit leaking. Today they have decided that they are going to have to re-open half of his incision and clean it out and pull some extra skin together and re stitch it so it can stop leaking and heal proberly. They said Chemo will be put off for another couple days but couldn't give us an exact date.
Physical and Speach Therapy have been coming in and working with him everyday so he doesn't lose his muscle tone and his oral skills. I cant believe how amazing all these theripists, Nurses and Doctors are. They treat my little boy like he is one of there own. We are all so lucky to have a Childrens Hospital right here in Utah that is top of the line. Sometimes its easy to take life for granted until we are put into situations like this.
Please everyone....COUNT YOUR BLESSINGS AND GIVE YOUR LITTLE ONES AN EXTRA HUG TONIGHT. and when your saying your prayers PLEASE pray for my little hero!!Thank you all for your love and support. Your messages keep me strong!!!
Love you all so much.
FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH!!!!!