One more battle!
Posted 11 hours ago
The Last couple of days have been the hardest days of our journey. We were moved to the PICU because of the fluid surrounding his tummy and intestines and because he started to run a fever. They were afraid he had an infection of some sort. They tested the fluid for infection and it came back negative. They drew some blood cultures to test for a blood infection and as of today NOTHING has grown. Thank you god!! They have done multiple test to see exactly whats going on in Travyn's body and why the fluid was accumulating. The test were coming back normal except one test they did on his liver. The test revealed that Travyns Liver Enzymes were extremly high. Liver enzymes are proteins that are produced to catalyzed chemical reactions needed for bodily funtions. High levels of these enzymes may indicate disease or damage. The Doctors ordered an ultrasound on his liver to see if he had a liver clot or any damage from the Chemo. The ultrasound didn't show a liver clot but it did show that his liver is slowly failing by a disease called "Veno Occlusive Disease" VOD- is a disease in the liver that causes the veins to contract and wont let the bodily fluids run through the liver correctly. This disease is VERY rare. This is caused by Chemo (cyclophasmide) they say it is one of the side effects. The doctor said in the 13 years he has been at primary Childrens, he has seen one case of this rare liver disease. He said that they have a medicine that can reverse it but he said it either can reverse it or it cant. However, Travyn didn't meet the criteria and im not sure exactly why. He said that it is not always permanet and in some cases it can get better on its own. When I heard this news I could not believe what I was hearing, I thought to myself "What next?" "and why my baby has another challenge to overcome" He still has one more dose for this cycle but they are laying off for awhile. But I refuse to let this get in our way of fighting this beast and I know Travyn WILL NOT let this take him down!!!! My faith is stronger then ever and God is still on our side holding us both and comforting my family. "WHAT DOESN'T KILL YOU, ONLY MAKES YOU STRONGER" right??? and I know the medicines will help Tray but more then that I BELIEVE THAT OUR FAITH IN GOD WILL HEAL MY BABY!!! I DO BELIEVE!!!!!!!!!!!!!Now for the good news, tonight they moved Travyn back up to the Penthouse (Oncology) floor where his cute room was waiting for him. I honestly think they saved his room for us because they didn't want to rent a Uhaul to move all his decorations and toys......lolHe is doing GREAT tonight! His enzymes are still high but God will take care of it. ITS IN HIS HANDS. :) GOD IS GREAT!!!!!!
THANK YOU SO MUCH FOR YOUR LOVE AND CONTINUOUS SUPPORT!!! AND ESPECIALLY YOUR PRAYERS. THEY ARE SO NEEDED AND THEY ALL HAVE BEEN HEARD AND ANSWERED. PLEASE KEEP MY PRECIOUS SON IN YOUR HEARTS AND PRAYERS!!!! YOUR MESSAGES ARE SO ENCOURAGING AND I LOVE EACH AND EVERYONE OF THEM..
THANK YOU SO MUCH!!!
I PRINT ALL YOUR MESSAGES OUT AND HAVE PUT THEM IN A 3 INCH BINDER SO I CAN GO BACK AND READ THEM WHEN I NEED SOME ENCOURAGMENT. WHEN TRAVYN GROWS UP AND I SHOW HIM HOW MANY PEOPLE CARED FOR HIM WHILE HE WAS SICK HE IS GOING TO SEE HOW LOVED HE WAS. HE WILL LOVE READING MY UPDATES AND YOUR MESSAGES. :)
Tuesday, March 31, 2009
Monday, March 30, 2009
I got a message from Whitney on saturday afternoon. She was changing Travyn's diaper and noticed that his tummy was looking really bloated. She had the resident on duty take a look, but they told her that he was fine. Then the next day she get a phone call from the hospital saying that all of his fluids were draining into his abdomen and that he was going to have to go in for surgery. They did the surgery, but it he is still not doing well. They think he might have a blood infection. The took a sample of his blood to find out for sure. His imune system is really down due to the chemo. I haven't heard anything else today, but I'll let everyone know when I do. Please keep Tray in your thoughts and prayers today!
Friday, March 27, 2009
Hey everyone! Tonight is the night for Travyn's dodge ball game/fundraiser! It is at Dixie State College, not the Dixie Center like I thought previously.
Place: Dixie State College
225 S. 700 E.
(brown building-old gym)
Date: Today! March 27, 2009
Time: Registration is from 5:00-6:00
The game will start just after 6:00
Cost:$4 per person and will now have 25 peaople per team
Place: Dixie State College
225 S. 700 E.
(brown building-old gym)
Date: Today! March 27, 2009
Time: Registration is from 5:00-6:00
The game will start just after 6:00
Cost:$4 per person and will now have 25 peaople per team
Wednesday, March 25, 2009
Wednesday March, 25 2009
Posted 37 minutes ago
A quick update on our "Fighter" He is doing awesome!! He hasn't thrown up today and his spirits are high. He is playing and smiling. He is still alittle weak but like I said Travyn isn't going to let this bring him down. They gave him Vincristine (Chemo) Last night and they will wait 3-4 days until they give him it agian. Then its a wrap for Cycle #2. His blood counts are starting to drop. Once they reach 500, I have asked all the nurses and doctors to wear mask and gloves. (just incase)My baby is getting through this just fine. I knew he would!! God is by his side duh!!! :) Thanks for all your love and support. Please keep praying for my sweet boy! LOVE YOU ALL.
I posted alot of new pics! Check them out! I also posted the ones from ST. Baldricks. :)
Posted 37 minutes ago
A quick update on our "Fighter" He is doing awesome!! He hasn't thrown up today and his spirits are high. He is playing and smiling. He is still alittle weak but like I said Travyn isn't going to let this bring him down. They gave him Vincristine (Chemo) Last night and they will wait 3-4 days until they give him it agian. Then its a wrap for Cycle #2. His blood counts are starting to drop. Once they reach 500, I have asked all the nurses and doctors to wear mask and gloves. (just incase)My baby is getting through this just fine. I knew he would!! God is by his side duh!!! :) Thanks for all your love and support. Please keep praying for my sweet boy! LOVE YOU ALL.
I posted alot of new pics! Check them out! I also posted the ones from ST. Baldricks. :)
Tuesday, March 24, 2009
Hey everyone! I just want to remind you all about the dodge ball game in honor of Travyn Shae Sinclair on Friday. It is for such a good cause. I really hope to see a lot of familiar faces there! For those of you who forgot here is a quick run down again.
Date: Friday-March 27, 2009
Time:6:00pm
Place: Dixie Center
Cost: $4.00 per person, 6 people per team ($20 per team total) and it is all going to help Travyn and his family!
Even if you don't want to play dodge ball please come out and support Tray. All donations are appreciated greatly! Thank you all so much!
Date: Friday-March 27, 2009
Time:6:00pm
Place: Dixie Center
Cost: $4.00 per person, 6 people per team ($20 per team total) and it is all going to help Travyn and his family!
Even if you don't want to play dodge ball please come out and support Tray. All donations are appreciated greatly! Thank you all so much!
Monday, March 23, 2009
Monday, March 23, 2009
Posted 9 minutes ago
Hey everyone, Sorry its been a while since my last update, We have had a very busy weekend with our little boy. On Friday was a pretty good day.G-Pa left aroung noon and my sister Lindsey came up and hung out. We were able to take Travyn on a walk because his blood counts are still pretty high. Tray absolutely loved it. We took him outsude on the patio. The weather was perfect, the sun was out and the birds were churping. :) Travyn fell asleep so we went back to the room. Jayson got back in town around 10:00 pm. I am so glad he is back. Saturday wasn't a very good day. :(Travyn didn't feel to good. I had to go run some errands so Jayson stayed with Tray at the hospital. While I was gone Tray had his first choking episode. Since he has started Chemo agian he has been very congested and flemy. He started to throw-up and Jayson quickly sat him up. Nothing was coming out and then Jayson realized that Travyn wasn't breathing or crying so Jayson stood up and was patting him on his back. That wasn't helping so Jayson finger swipped his mouth and the back of his throat. He pulled out a ton of thick mucus. Travyn started to breath and cry. He pushed the Call Button for the nurse and nobody came. He kept pushing it and then walked out to grab the nurse. Well Jayson found out the call button was unplugged. We are thinking when House Keeping cleaned Tray's room they must have bumped it or somthing. When I returned to the Hospital, things were calm and peaceful. Tray was asleep in Daddy's arms. I kept looking at Travyn thinking to myself "Why does Travyn look so red?" So I called the nurse in and she didn't know why either, so she paged the resident. While we were waiting Travyn woke up and was very fussy. His heart rate was 200-205 he kept trying to throw up but it was just dry heaves. The resident came in and was very concerned because of how red Travyn was and cause of his high heart rate. I was very distraught and just hated seeing my precious baby go through this. I couldn't help but to cry. The charge nurse came in and had some Morphine to give him. They thought because of the high heart rate he was in pain. The Morphine semmed to really help. He calmed down and fell asleep. His heart rate went back to 160-165 but he still was really red and blotchy. The nurse thought it could be an allergic reaction from the Chemo, so they gave him some Benedryl. That helped with the redness a little bit. Sunday, Travyn had a really good day. G-pa Wayne came up and spent the day with him while we went to church. Travyn and Wayne had a really good day together. Travyn was happy and feeling good. He was still a little red and blothcy. The doctors had no idea what it was but wasn't too concerned. Today, Travyn is doing ok. He has thrown up twice but he's still smiling and happy. He is a little weak and doesn't kick and play as hard as before. Travyn is a fighter and he isn't going to let this bring him down. I love my little boy so much and I cannot wait for the day when I bring him back to St. George. I STILL CAN SEE THAT DAY SO WELL!!!! God is still by his side and still comforts me and my whole family through this rough trial. The poem I posted earlier my dad found. That is truly how I feel and what I believe. My dad could not have found a better poem!!! Thanks Dad :)As for me and Jayson we are doing great! We are hanging tough, We could not do this without you guys and your wonderful prayers. We love you all so much. PLEASE KEEP TRAY IN YOUR HEART AND PRAYERS!!! WE CONTINUE EVERYDAY TO PRAY FOR YOU!!!
Posted 9 minutes ago
Hey everyone, Sorry its been a while since my last update, We have had a very busy weekend with our little boy. On Friday was a pretty good day.G-Pa left aroung noon and my sister Lindsey came up and hung out. We were able to take Travyn on a walk because his blood counts are still pretty high. Tray absolutely loved it. We took him outsude on the patio. The weather was perfect, the sun was out and the birds were churping. :) Travyn fell asleep so we went back to the room. Jayson got back in town around 10:00 pm. I am so glad he is back. Saturday wasn't a very good day. :(Travyn didn't feel to good. I had to go run some errands so Jayson stayed with Tray at the hospital. While I was gone Tray had his first choking episode. Since he has started Chemo agian he has been very congested and flemy. He started to throw-up and Jayson quickly sat him up. Nothing was coming out and then Jayson realized that Travyn wasn't breathing or crying so Jayson stood up and was patting him on his back. That wasn't helping so Jayson finger swipped his mouth and the back of his throat. He pulled out a ton of thick mucus. Travyn started to breath and cry. He pushed the Call Button for the nurse and nobody came. He kept pushing it and then walked out to grab the nurse. Well Jayson found out the call button was unplugged. We are thinking when House Keeping cleaned Tray's room they must have bumped it or somthing. When I returned to the Hospital, things were calm and peaceful. Tray was asleep in Daddy's arms. I kept looking at Travyn thinking to myself "Why does Travyn look so red?" So I called the nurse in and she didn't know why either, so she paged the resident. While we were waiting Travyn woke up and was very fussy. His heart rate was 200-205 he kept trying to throw up but it was just dry heaves. The resident came in and was very concerned because of how red Travyn was and cause of his high heart rate. I was very distraught and just hated seeing my precious baby go through this. I couldn't help but to cry. The charge nurse came in and had some Morphine to give him. They thought because of the high heart rate he was in pain. The Morphine semmed to really help. He calmed down and fell asleep. His heart rate went back to 160-165 but he still was really red and blotchy. The nurse thought it could be an allergic reaction from the Chemo, so they gave him some Benedryl. That helped with the redness a little bit. Sunday, Travyn had a really good day. G-pa Wayne came up and spent the day with him while we went to church. Travyn and Wayne had a really good day together. Travyn was happy and feeling good. He was still a little red and blothcy. The doctors had no idea what it was but wasn't too concerned. Today, Travyn is doing ok. He has thrown up twice but he's still smiling and happy. He is a little weak and doesn't kick and play as hard as before. Travyn is a fighter and he isn't going to let this bring him down. I love my little boy so much and I cannot wait for the day when I bring him back to St. George. I STILL CAN SEE THAT DAY SO WELL!!!! God is still by his side and still comforts me and my whole family through this rough trial. The poem I posted earlier my dad found. That is truly how I feel and what I believe. My dad could not have found a better poem!!! Thanks Dad :)As for me and Jayson we are doing great! We are hanging tough, We could not do this without you guys and your wonderful prayers. We love you all so much. PLEASE KEEP TRAY IN YOUR HEART AND PRAYERS!!! WE CONTINUE EVERYDAY TO PRAY FOR YOU!!!
The Chosen Mothers.
Posted 1 hour ago
The Chosen Mothers
Most women become a mother by accident, some by choice and a few by habit.Did you ever wonder how mothers of children with life threatening illnesses are chosen?
Somehow I visualize God hovering over earth selecting His instuments for propagation with care and deliberation...as He observes, He instructs His Angels to make notes in a giant ledger......
"Armstrong,Beth, a son" - "Forrest, Marjorie, a daughter" - "Rutledge, Carrie, twins".
Finally He passes a name to an Angel and says " Give her a child with cancer." The Angel is curious..."Why this one God? She is so happy."
"Exactly," smiles God, " Could I give a child with Cancer a Mother who does not know laughter?
That would be cruel."
"But, does she have patience?" asks the Angel.
" I don't want her too have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wear off, she will handle it."
"I watched her today," said God. "She has that feeling of self-confidence that is so rare and nessesary in a Mother. You see, the child I'm going to give her has his own world. She has to make him live in her world and thats not going to be easy."
"But Lord, I don't think she believes in you," said the Angel. " No matter, I can fix that. This one is perfect, She has enough selfishness."
The Angel gasps, "Selishness! is that a virtue?"
God nods. " If she can't separate herself from the child occasionally, she'll never survive. Yes here is the woman I will bless with this child. She dosen't realize it yet, but she is to be envied. She will never take anything her child does for granted. She will never consider a single step ordinary. I will permit her to see the things I see....ignorance, cruelty, prejudice...and allow her to rise above them."
(written by Erma Bombeck)
Posted 1 hour ago
The Chosen Mothers
Most women become a mother by accident, some by choice and a few by habit.Did you ever wonder how mothers of children with life threatening illnesses are chosen?
Somehow I visualize God hovering over earth selecting His instuments for propagation with care and deliberation...as He observes, He instructs His Angels to make notes in a giant ledger......
"Armstrong,Beth, a son" - "Forrest, Marjorie, a daughter" - "Rutledge, Carrie, twins".
Finally He passes a name to an Angel and says " Give her a child with cancer." The Angel is curious..."Why this one God? She is so happy."
"Exactly," smiles God, " Could I give a child with Cancer a Mother who does not know laughter?
That would be cruel."
"But, does she have patience?" asks the Angel.
" I don't want her too have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wear off, she will handle it."
"I watched her today," said God. "She has that feeling of self-confidence that is so rare and nessesary in a Mother. You see, the child I'm going to give her has his own world. She has to make him live in her world and thats not going to be easy."
"But Lord, I don't think she believes in you," said the Angel. " No matter, I can fix that. This one is perfect, She has enough selfishness."
The Angel gasps, "Selishness! is that a virtue?"
God nods. " If she can't separate herself from the child occasionally, she'll never survive. Yes here is the woman I will bless with this child. She dosen't realize it yet, but she is to be envied. She will never take anything her child does for granted. She will never consider a single step ordinary. I will permit her to see the things I see....ignorance, cruelty, prejudice...and allow her to rise above them."
(written by Erma Bombeck)
Thursday, March 19, 2009
Thursday, March 19, 2009
Posted 14 minutes ago
Just a quick update on Tray's progress. He is doing wonderful!! He got alittle sick earlier and threw up but after that he was a new little man. They are waiting till tomorrow to give him his next dose of Chemo. The Methotrexate isn't completly out of his system and they need to make sure it is completly out before they start again. I cant get over how resilant babies are. It just blows my mind. I have said this several times but, I really dont think I could ever go through what Travyn has gone through. MAN!! He is a strong boy. I truly believe that God picks the strongest people to go through such rough trials. God is good!! I will keep you updated when he starts his next round. Please keep praying for my sweet boy!!
THANKS FOR ALL YOUR LOVE AND SUPPORT EVERYONE!! I LOVE YOU ALL SO MUCH!!
Posted 14 minutes ago
Just a quick update on Tray's progress. He is doing wonderful!! He got alittle sick earlier and threw up but after that he was a new little man. They are waiting till tomorrow to give him his next dose of Chemo. The Methotrexate isn't completly out of his system and they need to make sure it is completly out before they start again. I cant get over how resilant babies are. It just blows my mind. I have said this several times but, I really dont think I could ever go through what Travyn has gone through. MAN!! He is a strong boy. I truly believe that God picks the strongest people to go through such rough trials. God is good!! I will keep you updated when he starts his next round. Please keep praying for my sweet boy!!
THANKS FOR ALL YOUR LOVE AND SUPPORT EVERYONE!! I LOVE YOU ALL SO MUCH!!
Wednesday, March 18, 2009
Day 2 On Cycle #2
Posted 2 hours ago
Travyn had a really good night considering he recieved Chemo. He woke up this morning and threw up a little. They gave him some Ativan to help with the nausea and he has been fine all day. He has been playing and giggling and we are lovin every minute of it. :DThey gave Travyn 2 different kinds of Chemo yesterday. The first one was Vincristine which is pushed into his central line quickly and the 2nd one is called Methotrexate that runs over a 4 hr drip. He received both of these on his first cycle. The one thing I forgot to mention in last update is that the decrease this cycle by 10%. They are thinking since he got an infection last time they can decrease the chemo this cycle and be ok. Which to me is great!!The Methotrexate is the scary one. It causes mouth sores and they can go all the way through his G-I Tract. Last time Travyn got the sores really bad in his mouth and got a really bad diaper rash. This is called "Mucotitis" The crazy thing is that right when it gets in his body they want it out as soon as possible. I guess it's that potient to do the job that quick...WOW!!!! somthing that I learned from one of my favorite nurses is, a long time ago they use to inject the chemo into a vein in the arm. Well, this girl came in to receive her Chemo and when they were injecting here arm with Chemo the needle went through the vein and they pushed the Chemo into the tissue of her arm. Well today that arm has very little movement. The Chemo killed the tissue and the muscles. and thats why they place the Central Line thats goes in his chest and the thread it up to his Juguler and from his Juguler they thread it down to his heart so when they give these kids Chemo it goes strait in the vein. Research has shown that Chemo cant hurt the veins. Im not trying to scare you guys that story happened a long time ago. It just shows you how powerful Chemo is.Tomorrow Travyn will recieve his 2nd dose of Chemo. Which will be VP-16 amd Cyclophosphamide. If I remember correctly the Cyclophosamide is very damaging to the bladder so they will give him a Rescue medicine called Mesna. The Mesna coats the bladder so it can protect it from bleeding. They will watch his urine output very closly to make sure he doesn't pee blood. As for now, our Fighter is doing fantastic. He is still Mr. Puff from all the fluids. Its so darn cute!! I will keep on updating you on his progress. My sweet baby boy is sleeping right now so I better get ready for some Physical Therapy for when he wakes up. Thanks for all your uplifting messages. I look forward to reading them.....
About St. Baldricks, It was so much fun! About 20 people shaved there heads. Even 5 women did. one was a 15 year old Cheerleader. WOW, talk about guts!! I think its so great. I got alot of pictures. Jayson took his camera back to Ceadr City yesterday but I will get them on Friday and post them. You guys are gonna love them. They had a car that was donated by ACME and they wrote all over it "CANCER SUCKS" and we took turns hitting it with a sledge hammer. It was a blast!!!
THANKS FOR YOU LOVE AND SUPPORT EVERYONE!!! LOVE YOU ALL!!!PLEASE PLEASE PLEASE KEEP PRAYING FOR MY SWEET BABY. WE WILL CONTINUE TO PRAY FOR YOU!!! XOXO
Posted 2 hours ago
Travyn had a really good night considering he recieved Chemo. He woke up this morning and threw up a little. They gave him some Ativan to help with the nausea and he has been fine all day. He has been playing and giggling and we are lovin every minute of it. :DThey gave Travyn 2 different kinds of Chemo yesterday. The first one was Vincristine which is pushed into his central line quickly and the 2nd one is called Methotrexate that runs over a 4 hr drip. He received both of these on his first cycle. The one thing I forgot to mention in last update is that the decrease this cycle by 10%. They are thinking since he got an infection last time they can decrease the chemo this cycle and be ok. Which to me is great!!The Methotrexate is the scary one. It causes mouth sores and they can go all the way through his G-I Tract. Last time Travyn got the sores really bad in his mouth and got a really bad diaper rash. This is called "Mucotitis" The crazy thing is that right when it gets in his body they want it out as soon as possible. I guess it's that potient to do the job that quick...WOW!!!! somthing that I learned from one of my favorite nurses is, a long time ago they use to inject the chemo into a vein in the arm. Well, this girl came in to receive her Chemo and when they were injecting here arm with Chemo the needle went through the vein and they pushed the Chemo into the tissue of her arm. Well today that arm has very little movement. The Chemo killed the tissue and the muscles. and thats why they place the Central Line thats goes in his chest and the thread it up to his Juguler and from his Juguler they thread it down to his heart so when they give these kids Chemo it goes strait in the vein. Research has shown that Chemo cant hurt the veins. Im not trying to scare you guys that story happened a long time ago. It just shows you how powerful Chemo is.Tomorrow Travyn will recieve his 2nd dose of Chemo. Which will be VP-16 amd Cyclophosphamide. If I remember correctly the Cyclophosamide is very damaging to the bladder so they will give him a Rescue medicine called Mesna. The Mesna coats the bladder so it can protect it from bleeding. They will watch his urine output very closly to make sure he doesn't pee blood. As for now, our Fighter is doing fantastic. He is still Mr. Puff from all the fluids. Its so darn cute!! I will keep on updating you on his progress. My sweet baby boy is sleeping right now so I better get ready for some Physical Therapy for when he wakes up. Thanks for all your uplifting messages. I look forward to reading them.....
About St. Baldricks, It was so much fun! About 20 people shaved there heads. Even 5 women did. one was a 15 year old Cheerleader. WOW, talk about guts!! I think its so great. I got alot of pictures. Jayson took his camera back to Ceadr City yesterday but I will get them on Friday and post them. You guys are gonna love them. They had a car that was donated by ACME and they wrote all over it "CANCER SUCKS" and we took turns hitting it with a sledge hammer. It was a blast!!!
THANKS FOR YOU LOVE AND SUPPORT EVERYONE!!! LOVE YOU ALL!!!PLEASE PLEASE PLEASE KEEP PRAYING FOR MY SWEET BABY. WE WILL CONTINUE TO PRAY FOR YOU!!! XOXO
Chemo Cycle #2 has begun!!!
Posted 11 hours ago
Today is Tuesday and its about 10:30 at night. We have had a really busy day today, but its all been so positive. Travyn started his 2nd cycle of Chemotherapy today at 6:00 pm. They started him out on alot of fluids first so when he receives the Chemo he can pee it out quickly. They dont want the Chemo to stay in his body for too long becuase the potientcy is so agressive and it can be very damaging to certain parts of the body. He was so cute though, he looked lke the "Michillan Man" He was so swollen and puffy from the fluids, I just wanted to squeeze him. I was so nerveous and scared for this cycle to begin. I dont think i am physically ready for all the side effects from Chemo to affect my sweet boy. Travyn has been so happy the past 2 weeks. He has been a different baby. He just loves life and loves to tease and play with everyone. He is a happy 6 month old baby!!! As a parent it just breaks my heart to see what he has gone through and knowing what comes with the Chemo side effects of not feeling good, nauseated and feeling weak. But I know i am mentally ready and I know God is watching over him and wont let him suffer to much. Travyn is not just a little 6 month old baby. He is a 6 month old that has this determined look in his eye telling me that he is going to be Ok and not to cry anymore cause im scared. Im not kidding, Travyn brings more comfort in my life then anything has. He is a FIGHTER and he is fighting this and taking charge of his little body. When I look at Travyn in the eyes, I am thinking of the Chemo just eating away the tumor and doing its job. I think about this daily!!! My baby is so strong and I know that he will get through this just fine.My Mom's friend told her a story about her niece who was diagnosed with a rare cancer and had to go through Chemo for a very long time. She was only 4 years old. She told her Mommy that she was never alone. Someone was always holding her hand. She described him as a Beautiful Man!!! This is SO comforting to me because I believe that Heavenly Father is holding my little boy in his arms when I can not be with him. Even though my heart feels so shattered the peace and comfort can be so overwhelming at times and i know where this comes from. I feel so very blessed to have this feeling.I will keep you updated on his daily progress. I better go try and get some sleep tomorrow is a BIG day and I need to be on top of my game for my precious baby boy!!!
THANKS FOR ALL YOUR WONDERFUL LOVE AND SUPPORT!!!! ESPECIALLY YOUR POWERFUL PRAYERS!!!! WE HAVE HAD SO MANY MIRACLES HAPPEN ALREADY. PLEASE KEEP ON PRAYING FOR MY SWEET BOY... I LOVE YOU ALL SO MUCH. YOUR MESSAGES KEEP ME STRONG AND I LOVE THEM ALL!!!
I PRAY THAT GOD WILL BLESS YOU WITH ANY ISSUE YOU MAY BE FACING AND THAT THE LORD WILL SHOWER YOU WITH HIS UNCONDITIONAL LOVE.
THANK YOU AND GOOD NIGHT... :)
Posted 11 hours ago
Today is Tuesday and its about 10:30 at night. We have had a really busy day today, but its all been so positive. Travyn started his 2nd cycle of Chemotherapy today at 6:00 pm. They started him out on alot of fluids first so when he receives the Chemo he can pee it out quickly. They dont want the Chemo to stay in his body for too long becuase the potientcy is so agressive and it can be very damaging to certain parts of the body. He was so cute though, he looked lke the "Michillan Man" He was so swollen and puffy from the fluids, I just wanted to squeeze him. I was so nerveous and scared for this cycle to begin. I dont think i am physically ready for all the side effects from Chemo to affect my sweet boy. Travyn has been so happy the past 2 weeks. He has been a different baby. He just loves life and loves to tease and play with everyone. He is a happy 6 month old baby!!! As a parent it just breaks my heart to see what he has gone through and knowing what comes with the Chemo side effects of not feeling good, nauseated and feeling weak. But I know i am mentally ready and I know God is watching over him and wont let him suffer to much. Travyn is not just a little 6 month old baby. He is a 6 month old that has this determined look in his eye telling me that he is going to be Ok and not to cry anymore cause im scared. Im not kidding, Travyn brings more comfort in my life then anything has. He is a FIGHTER and he is fighting this and taking charge of his little body. When I look at Travyn in the eyes, I am thinking of the Chemo just eating away the tumor and doing its job. I think about this daily!!! My baby is so strong and I know that he will get through this just fine.My Mom's friend told her a story about her niece who was diagnosed with a rare cancer and had to go through Chemo for a very long time. She was only 4 years old. She told her Mommy that she was never alone. Someone was always holding her hand. She described him as a Beautiful Man!!! This is SO comforting to me because I believe that Heavenly Father is holding my little boy in his arms when I can not be with him. Even though my heart feels so shattered the peace and comfort can be so overwhelming at times and i know where this comes from. I feel so very blessed to have this feeling.I will keep you updated on his daily progress. I better go try and get some sleep tomorrow is a BIG day and I need to be on top of my game for my precious baby boy!!!
THANKS FOR ALL YOUR WONDERFUL LOVE AND SUPPORT!!!! ESPECIALLY YOUR POWERFUL PRAYERS!!!! WE HAVE HAD SO MANY MIRACLES HAPPEN ALREADY. PLEASE KEEP ON PRAYING FOR MY SWEET BOY... I LOVE YOU ALL SO MUCH. YOUR MESSAGES KEEP ME STRONG AND I LOVE THEM ALL!!!
I PRAY THAT GOD WILL BLESS YOU WITH ANY ISSUE YOU MAY BE FACING AND THAT THE LORD WILL SHOWER YOU WITH HIS UNCONDITIONAL LOVE.
THANK YOU AND GOOD NIGHT... :)
Tuesday, March 17, 2009
Good News.
Posted Mar 13, 2009 10:46pm
Today has been a really good and positive day. We FINALLY got Travyn's MRI results back. I can't even begin to tell you how Blessed we feel with his results. My hope and strength are so high and I know that today was just a confirmation from God that he has Travyn in his hands and he isn't going anywhere. :)The Doctor came in around 5:00 pm to talk to us about the results. She said the Nuero Surgeons where very pleased with how the remaining tumor looks. She said there has been no re-growth of the tumor and what was left in has DECREASED IN SIZE!!!!!!!!!! OMG!!! Is that not the best news??? That means the tumor IS responding to the Chemotherapy and literally disolving out of my baby's body. Travyn has completed one cycle of Chemo. ONE!!! Just think when he completes 5 or 6. That "C" word is going to be GONE!!!!! "CANCER FREE" "CANCER FREE" "CANCER FREE" "CANCER FREE" "CANCER FREE" "CANCER FREE"I feel so blessed and im so grateful with those awesome results. We are on our way to being "CANCER FREE" I just want to thank all of you for your Prayers. They have been heard. Please keep praying for my sweet baby boy, that the tumor continues to respond to the Chemo and leave his little body.I am going to go home now and sleep very well. Travyn has had another great day. He has been so happy and just LOVES to flirt with the nurses. He is so funny!!! lol We had some Physical Therapy today and he is getting stronger and stronger everyday. Tomorrow is the St. Baldricks Event. They will be honoring Travyn in it and we are so excited to go. Jayson is going to shave his head with all the other Shavees to support Chemo Patients. My sister Ashleigh had some T-Shirts made up that say "FIGHTER" on the back. They are so cute. I will post pics of the event when I get back.
THANK YOU SO MUCH FOR YOUR CONTINIOUS LOVE AND SUPPORT. YOUR PRAYERS HAVE BEEN ANSWERED AND I THANK HEVENLY FATHER FOR HEALING MY BABY AND STAYING BY HIS SIDE. GOD IS GOOD!!!!!!!
LOVE YOU ALL SO MUCH!!!
Posted Mar 13, 2009 10:46pm
Today has been a really good and positive day. We FINALLY got Travyn's MRI results back. I can't even begin to tell you how Blessed we feel with his results. My hope and strength are so high and I know that today was just a confirmation from God that he has Travyn in his hands and he isn't going anywhere. :)The Doctor came in around 5:00 pm to talk to us about the results. She said the Nuero Surgeons where very pleased with how the remaining tumor looks. She said there has been no re-growth of the tumor and what was left in has DECREASED IN SIZE!!!!!!!!!! OMG!!! Is that not the best news??? That means the tumor IS responding to the Chemotherapy and literally disolving out of my baby's body. Travyn has completed one cycle of Chemo. ONE!!! Just think when he completes 5 or 6. That "C" word is going to be GONE!!!!! "CANCER FREE" "CANCER FREE" "CANCER FREE" "CANCER FREE" "CANCER FREE" "CANCER FREE"I feel so blessed and im so grateful with those awesome results. We are on our way to being "CANCER FREE" I just want to thank all of you for your Prayers. They have been heard. Please keep praying for my sweet baby boy, that the tumor continues to respond to the Chemo and leave his little body.I am going to go home now and sleep very well. Travyn has had another great day. He has been so happy and just LOVES to flirt with the nurses. He is so funny!!! lol We had some Physical Therapy today and he is getting stronger and stronger everyday. Tomorrow is the St. Baldricks Event. They will be honoring Travyn in it and we are so excited to go. Jayson is going to shave his head with all the other Shavees to support Chemo Patients. My sister Ashleigh had some T-Shirts made up that say "FIGHTER" on the back. They are so cute. I will post pics of the event when I get back.
THANK YOU SO MUCH FOR YOUR CONTINIOUS LOVE AND SUPPORT. YOUR PRAYERS HAVE BEEN ANSWERED AND I THANK HEVENLY FATHER FOR HEALING MY BABY AND STAYING BY HIS SIDE. GOD IS GOOD!!!!!!!
LOVE YOU ALL SO MUCH!!!
Friday, March 13, 2009
No MRI Results Yet.
Posted 16 hours ago
Its about 7:30 pm on Thursday and we have yet to received Travyn's MRI results. They told us that Travyn was gonna get his MRI done around 8:00 in the morning but that changed. They finally came in at 4:00 pm to get us. Right before they came my Dad gave Travyn a beautiful blessing. Travyn was a little fussy before his MRI because they stopped his feeds last night at 2:00 am and he was STARVING!! It was like the blessing really calmed him down and relaxed his little belly. My precious baby passed out in his Daddy's arms as we walked downstairs to the MRI unit. :) When we got there they hooked Tray up to the machine to take his vitals. As we were waiting the Doctor came and asked us if we wanted to watch while Travyn got his MRI done. I was so HAPPY that he asked us becuase I did not want to leave him, so I told him "YES" We walk in this huge room with this HUGE machine that takes the MRI, and again was intimidated by the technology and computers. So they get Travyn sedated and put him on this long bench that slides into this tunnel of this HUGE machine. The nurse said "Here, Your going to need these" I looked to see what he was giving us and they were EAR PLUGS! lol I looked at him laughing and said "WHY?" thinking we were going to be in the little room behind the glass with him. But NOPE, We were going to be in the same room with This HUGE, LOUD machine and tiny Travyn. The nurse said well this machine is very loud and it takes about 45 min. I was thinking to myself. OK, this shouldn't be too bad!! So they walk out and shut the door and walked into there little room with a window so they could watch Tray.Me, Jayson and my Dad sat down and waited for this to be over. The MRI started and IT WAS SO LOUD!!!! IT SOUNDED LIKE A SPACE SHUTTLE AND TECHNO MUSIC TOGETHER. OH MY GOSH!!! My heart was beating so fast and I kept looking in this little tunnel where Travyn was, thinking Oh, Baby please dont wake up. PLEASE STAY ASLEEP!! So 30 minutes pass and the doctor walks in while this LOUD machine was still going. He had a surrenge in his hand with medicine in it. He reached in the tunnel and put this medicine into Tray's Central Line. He got out threw the surrenge away, looked at us and smiled and said "Almost Done" well it didn't seem like we were almost done. 30 minutes later we got down and we all had a massive head ache from this loud space shuttle that played techno music. OMG, I had the worst headache.I asked the doctor what that medicine was that he gave Tray during the MRI. He said "while I was injecting it into his Central Line We took pictures of his brain. The Medicine is suppose to run through his whole body and up to his brain and react. So we take pictures to see all the reaction of the brain" WOOOOW!! So we got down and went back up to his room while we waited for the Doctor to come in and tell us the results we have been dying to hear. The Doctor walks in and says "I dont have results Yet" But we will have them tomorrow" :( she talked to us more on Trays progress and then left his room. So when we get the results back tomorrow, I will update you!! PROMISE!! But other then that long story, Travyn is doing awesome still. Loving his little life so so so much. Talking, growling, squilling, squirmming. They are planning on strating Chemo tomorrow. But ya never know here :) That can ALWAYS change.....
THANK YOU ALL FOR YOUR AMAZING LOVE AND SUPPORT. WE LOVE YOU GUYS SO MUCH. YOU WILL NEVER KNOW HOW MUCH YOU ALL MEAN TO US.......PLEASE KEEP PRAYING FOR GOOD RESULTS TOMORROW. WE CONTINUE TO PRAY FOR YOU!
GOD BLESS
Posted 16 hours ago
Its about 7:30 pm on Thursday and we have yet to received Travyn's MRI results. They told us that Travyn was gonna get his MRI done around 8:00 in the morning but that changed. They finally came in at 4:00 pm to get us. Right before they came my Dad gave Travyn a beautiful blessing. Travyn was a little fussy before his MRI because they stopped his feeds last night at 2:00 am and he was STARVING!! It was like the blessing really calmed him down and relaxed his little belly. My precious baby passed out in his Daddy's arms as we walked downstairs to the MRI unit. :) When we got there they hooked Tray up to the machine to take his vitals. As we were waiting the Doctor came and asked us if we wanted to watch while Travyn got his MRI done. I was so HAPPY that he asked us becuase I did not want to leave him, so I told him "YES" We walk in this huge room with this HUGE machine that takes the MRI, and again was intimidated by the technology and computers. So they get Travyn sedated and put him on this long bench that slides into this tunnel of this HUGE machine. The nurse said "Here, Your going to need these" I looked to see what he was giving us and they were EAR PLUGS! lol I looked at him laughing and said "WHY?" thinking we were going to be in the little room behind the glass with him. But NOPE, We were going to be in the same room with This HUGE, LOUD machine and tiny Travyn. The nurse said well this machine is very loud and it takes about 45 min. I was thinking to myself. OK, this shouldn't be too bad!! So they walk out and shut the door and walked into there little room with a window so they could watch Tray.Me, Jayson and my Dad sat down and waited for this to be over. The MRI started and IT WAS SO LOUD!!!! IT SOUNDED LIKE A SPACE SHUTTLE AND TECHNO MUSIC TOGETHER. OH MY GOSH!!! My heart was beating so fast and I kept looking in this little tunnel where Travyn was, thinking Oh, Baby please dont wake up. PLEASE STAY ASLEEP!! So 30 minutes pass and the doctor walks in while this LOUD machine was still going. He had a surrenge in his hand with medicine in it. He reached in the tunnel and put this medicine into Tray's Central Line. He got out threw the surrenge away, looked at us and smiled and said "Almost Done" well it didn't seem like we were almost done. 30 minutes later we got down and we all had a massive head ache from this loud space shuttle that played techno music. OMG, I had the worst headache.I asked the doctor what that medicine was that he gave Tray during the MRI. He said "while I was injecting it into his Central Line We took pictures of his brain. The Medicine is suppose to run through his whole body and up to his brain and react. So we take pictures to see all the reaction of the brain" WOOOOW!! So we got down and went back up to his room while we waited for the Doctor to come in and tell us the results we have been dying to hear. The Doctor walks in and says "I dont have results Yet" But we will have them tomorrow" :( she talked to us more on Trays progress and then left his room. So when we get the results back tomorrow, I will update you!! PROMISE!! But other then that long story, Travyn is doing awesome still. Loving his little life so so so much. Talking, growling, squilling, squirmming. They are planning on strating Chemo tomorrow. But ya never know here :) That can ALWAYS change.....
THANK YOU ALL FOR YOUR AMAZING LOVE AND SUPPORT. WE LOVE YOU GUYS SO MUCH. YOU WILL NEVER KNOW HOW MUCH YOU ALL MEAN TO US.......PLEASE KEEP PRAYING FOR GOOD RESULTS TOMORROW. WE CONTINUE TO PRAY FOR YOU!
GOD BLESS
Thursday, March 12, 2009
MRI Tomorrow
Posted 18 hours ago
Hay Guys, this is going to be a quick update. They haven't started chemo quite yet, his platelets need to be over 100,000 and they are only 40,000 so we will wait until they come back on there own. Platelets are what clot your blood. They are not like the white cells that fight infection. They think the stem-cell collection drained him and everything needs to be perfect to start chemo. They will hopefully be starting chemo later this week.They have decided to do an MRI tomorrow morning!!!!! To see how the tumor looks and if we have made progress after the first round of chemo. This will be the first MRI since surgery so lets all pray and fast that there is signifigant improvment or even NO sign of tumor. Tray is still very playful and continued physical therapy today on his matt. Jayson and I let him lay on the matt with all his toys where he rolls around grabbing everything and talking. He likes all his nurses and flirts with all the ladies and they all love taking care of him. Jayson found his funny spot and tickels his bare belly to which Travyn will laugh and giggle, its the cutest thing to watch. He also likes to growl and yell in his high pitched voice when he is getting attention, which is all the time.I will update you all tomorrow after we get the results of his MRI.
Thank you so much for your continued love, prayers, and support we couldn't get through this without you
May God bless you with whatever you stand in need of and let the Lord shower you with his unconditional love.
Posted 18 hours ago
Hay Guys, this is going to be a quick update. They haven't started chemo quite yet, his platelets need to be over 100,000 and they are only 40,000 so we will wait until they come back on there own. Platelets are what clot your blood. They are not like the white cells that fight infection. They think the stem-cell collection drained him and everything needs to be perfect to start chemo. They will hopefully be starting chemo later this week.They have decided to do an MRI tomorrow morning!!!!! To see how the tumor looks and if we have made progress after the first round of chemo. This will be the first MRI since surgery so lets all pray and fast that there is signifigant improvment or even NO sign of tumor. Tray is still very playful and continued physical therapy today on his matt. Jayson and I let him lay on the matt with all his toys where he rolls around grabbing everything and talking. He likes all his nurses and flirts with all the ladies and they all love taking care of him. Jayson found his funny spot and tickels his bare belly to which Travyn will laugh and giggle, its the cutest thing to watch. He also likes to growl and yell in his high pitched voice when he is getting attention, which is all the time.I will update you all tomorrow after we get the results of his MRI.
Thank you so much for your continued love, prayers, and support we couldn't get through this without you
May God bless you with whatever you stand in need of and let the Lord shower you with his unconditional love.
Wednesday, March 11, 2009
Stem Cell Collection.
Posted 16 hours ago
I just want to start this off by telling you all how GREAT Travyn is doing!!! He is a different little boy then when he was on Chemo. He is WILD! He is talking, growling, wiggling, squirming, and just being a 6 month old little boy. :) We are so happy with the way things have gone the past few days. We are truly blessed that Travyn is feeling happy and doing so well with his progress after his first cycle of Chemotherapy. Travyn's Blood count droppeed completely to zero and wasn't feeling to good. They started to give him "Neupogen" injections every night for 2 weeks. "Neupogen" is a man-made form of a protein that stimulates the growth of white blood cells in your body. White blood cells help your body fight against infection.Neupogen is used to treat neutropenia, a lack of certain white blood cells caused by cancer, bone marrow transplant, receiving chemotherapy, or by other conditions. Travyn's Blood count jumped through the roof the past week and the Doctor's were so impressed with his progress and they felt very confident it was time for his "Stem Cell Collection" (which is great news) yesterday they put in the collection catheter. They sedated him for about an hour. The line was placed in his right groin femoral vein. They stich it in so he cant kick it out and becuase it is in such a large vein.They told me yesterday morning before they started, that they were positive that they would collect enough Stem Cells in this procedure and that they wouldn't have to come back and they could remove the catheter later that night. So I was really happy to hear that. The catheter was pretty big and it looked very uncomrtable for Tray.They hooked the catheter up to an Apheresis Machine which slowly withdrew his blood from his little body and returned it to him after the Stem Cells were collected. They had to prime the machine first with a unit of blood because Travyns body is way too small. It would have sucked all of his blood out of him before it could return it. so he did get 1 unit of blood yesterday. This machine was so intimidating and was so interesting how it would seperate his blood and knew what was what. WOW!!! It had 2 bags hanging from the top of it. One bag would collect his plasma and the other would collect his Stem Cells. The Stem Cell Collection procedure was 5 1/2 hours long. They gave him calcium the whole time so he didn't run too low on calcium and that helped to prevent nausea. They rolled the Apherisis Machine into his room which was convinent and 2 nice ladys stayed in the room while the machine collected. It was very loud and I couldn't wait until it was over. They finished around 5 and packed up and left. One of the Stem Cell Ladys told me they will go back to the lab and thats where they will count the Stem cells and once they obtained the appropriate amount, the collection will be Complete. Well that wasn't the case, we got his count results back and they didn't quite have enough Stem Cells to complete the procedure. They said they were going to have to come back in the morning and do it all over agian. They didn't know why the machine didn't collect enough. I asked if it had to do with Travyn and his Blood Count and they said No and it had somthing to do with the machine. Well They had to keep the catheter in one night :( but it wasn't that bad. They came this morning set all up again and primed the machine with another unit of blood (so #2 unit of blood this week for tray) they did it all over agian. They ran the machine a little faster today so it only took 3 1/2 hours then they packed up and left. Well we just got the results back and the collected 28.2 million Stem Cells and they only needed 15 million....lol AMAZING!!My boy is such a stud!!! :)They will now divide the stem cells into 6 different bags and Harvest them (Freeze Them) and then after his high doses of chemo then they will thaw out his Stem Cells and replace them in his blood to help replenish his bone marrow. :) STEM CELL COLLECTION COMPLETE!!!!They are now getting ready to remove his catheter.....YIPEEE!!!They are thinking they will start his next cycle of Chemo TOMMORROW!! I know Scary!!! Right???? Other then that things are going GREAT. Tray is doing amazing and for myself, im doing alot better then the past couple of days. Its a rollar coaster ride that i've never been on before in my life. But im managing and getting along just fine. Jayson came back from Cedar last night. Im so glad he is back I missed him so much. He helps me out alot with Tray so im grateful He is back. Grandpa came up today and Im also very grateful he is here. I HAVE THE MOST AMAZING FAMILY EVER!!!
And to everyone else Thank you so much for your love and support!! I love you all so so very much. Your messages give me strength and encourage me not to give up hope!!! I WILL ALWAYS HAVE HOPE FOR MY SON!!! AND I STILL CAN SEE THE DAY WHEN I AM TAKING TRAY HOME TO ST. GEORGE.....CANCER FREE!!!!!!!
pLEASE KEEP PRAYING FOR MY BABY TRAY!! YOUR PRAYERS HAVE BEEN HEARD AND ARE BEING ANSWERED.....THANK YOU!!!!
LOVE YOU ALL!!
Posted 16 hours ago
I just want to start this off by telling you all how GREAT Travyn is doing!!! He is a different little boy then when he was on Chemo. He is WILD! He is talking, growling, wiggling, squirming, and just being a 6 month old little boy. :) We are so happy with the way things have gone the past few days. We are truly blessed that Travyn is feeling happy and doing so well with his progress after his first cycle of Chemotherapy. Travyn's Blood count droppeed completely to zero and wasn't feeling to good. They started to give him "Neupogen" injections every night for 2 weeks. "Neupogen" is a man-made form of a protein that stimulates the growth of white blood cells in your body. White blood cells help your body fight against infection.Neupogen is used to treat neutropenia, a lack of certain white blood cells caused by cancer, bone marrow transplant, receiving chemotherapy, or by other conditions. Travyn's Blood count jumped through the roof the past week and the Doctor's were so impressed with his progress and they felt very confident it was time for his "Stem Cell Collection" (which is great news) yesterday they put in the collection catheter. They sedated him for about an hour. The line was placed in his right groin femoral vein. They stich it in so he cant kick it out and becuase it is in such a large vein.They told me yesterday morning before they started, that they were positive that they would collect enough Stem Cells in this procedure and that they wouldn't have to come back and they could remove the catheter later that night. So I was really happy to hear that. The catheter was pretty big and it looked very uncomrtable for Tray.They hooked the catheter up to an Apheresis Machine which slowly withdrew his blood from his little body and returned it to him after the Stem Cells were collected. They had to prime the machine first with a unit of blood because Travyns body is way too small. It would have sucked all of his blood out of him before it could return it. so he did get 1 unit of blood yesterday. This machine was so intimidating and was so interesting how it would seperate his blood and knew what was what. WOW!!! It had 2 bags hanging from the top of it. One bag would collect his plasma and the other would collect his Stem Cells. The Stem Cell Collection procedure was 5 1/2 hours long. They gave him calcium the whole time so he didn't run too low on calcium and that helped to prevent nausea. They rolled the Apherisis Machine into his room which was convinent and 2 nice ladys stayed in the room while the machine collected. It was very loud and I couldn't wait until it was over. They finished around 5 and packed up and left. One of the Stem Cell Ladys told me they will go back to the lab and thats where they will count the Stem cells and once they obtained the appropriate amount, the collection will be Complete. Well that wasn't the case, we got his count results back and they didn't quite have enough Stem Cells to complete the procedure. They said they were going to have to come back in the morning and do it all over agian. They didn't know why the machine didn't collect enough. I asked if it had to do with Travyn and his Blood Count and they said No and it had somthing to do with the machine. Well They had to keep the catheter in one night :( but it wasn't that bad. They came this morning set all up again and primed the machine with another unit of blood (so #2 unit of blood this week for tray) they did it all over agian. They ran the machine a little faster today so it only took 3 1/2 hours then they packed up and left. Well we just got the results back and the collected 28.2 million Stem Cells and they only needed 15 million....lol AMAZING!!My boy is such a stud!!! :)They will now divide the stem cells into 6 different bags and Harvest them (Freeze Them) and then after his high doses of chemo then they will thaw out his Stem Cells and replace them in his blood to help replenish his bone marrow. :) STEM CELL COLLECTION COMPLETE!!!!They are now getting ready to remove his catheter.....YIPEEE!!!They are thinking they will start his next cycle of Chemo TOMMORROW!! I know Scary!!! Right???? Other then that things are going GREAT. Tray is doing amazing and for myself, im doing alot better then the past couple of days. Its a rollar coaster ride that i've never been on before in my life. But im managing and getting along just fine. Jayson came back from Cedar last night. Im so glad he is back I missed him so much. He helps me out alot with Tray so im grateful He is back. Grandpa came up today and Im also very grateful he is here. I HAVE THE MOST AMAZING FAMILY EVER!!!
And to everyone else Thank you so much for your love and support!! I love you all so so very much. Your messages give me strength and encourage me not to give up hope!!! I WILL ALWAYS HAVE HOPE FOR MY SON!!! AND I STILL CAN SEE THE DAY WHEN I AM TAKING TRAY HOME TO ST. GEORGE.....CANCER FREE!!!!!!!
pLEASE KEEP PRAYING FOR MY BABY TRAY!! YOUR PRAYERS HAVE BEEN HEARD AND ARE BEING ANSWERED.....THANK YOU!!!!
LOVE YOU ALL!!
Tuesday, March 10, 2009
Sunday 3/8/2009
Posted 2 days ago
Today is Sunday and its about 5:00 at night. I have had an OK day. I went to chruch this morning. It felt so good to be there. I saw 2 of my best friends from high school at church. It was so crazy because last week I was trying to look them up on Facebook and Myspace and could not find them. I just kept thinking about them, wondering how they were doing and just simply wanted to get in contact with them. It was GREAT to see them!! God works in such mysterious ways ;) I LOVE IT!!!!Travyn is doing absolutley wonderful. His blood counts are jumping right back up. The doctors are so immpressed with his progress and how well he is doing. The "Mucositis" is much better and he is not in as much pain. They stopped his feeds on wednesday because they thought it was making the "Mucositis" worst and was really hurting him. On Thursday He was playing in his swing and somehow Tray's little finger got under his feeding tube and he pulled it right out of his nose. I turned away for 2 seconds and I heard him fuss alittle so I looked down and the tube was hanging out of his nose. lol.... I called the nurse in his room as I was trying to hold in his tube. She said "OH YEAH! I forgot to tell you. In the notes it says to tell the Mother, if she wants us to remove the tube we can Untill they start his feeds again." I COULDN'T BELIEVE IT!!! I WAS SO HAPPY, So I pulled that sucker right out. It didn't hurt him one bit. HE LOVED not having it in his nose. It was like he was saying "Look Mom NO TUBES!!!" Im serious, he was so happy after. He was going crazy with his toys and smiling, talking and getting so excited it straight pooped him out. He passed out in his swing. We are so happy to see him doing so well and we feel so blessed on his progess. They did have to put his feeding tube back in yesterday but thats OK! He is still happy and doing great. Tomorrow is a BIG day for my little fighter. Since his blood count is back up they are going to take Stem Cells out of his Bone Marrow and harvest (freeze) them. So when its time for his Bone Marrow Transplant they will put them back in his blood. This procedure can be pretty painful for Travyn, but I will be right by his side the whole time. I can actually hold him while they are doing it. They put an I.V. in his groind and his blood will run through a machine and the machine will separate his stem cells from his blood. I know! its amazing what technology has to offer us these days. We are so thankful that my little boy gets to have this procedure done because it can do wonders for Cancer patients!!!! I will update you tomorrow on how it goes. Other then that things are going great. For me, im having my good days and bad. Today has been rough but tomorrow is a new day!!! Your prayers have all been heared and we are continuing to see miracles in my Precious Little Boys life. He is SOOO Brave and Strong!! God has him under his wing and isn't letting go until he is well. :)
Thanks for all your love and Support!!! Your prayers are very much appreciated. Please keep them coming!!! We love you so much, and could not do this without each and everyone of you. God Bless You!!!
Posted 2 days ago
Today is Sunday and its about 5:00 at night. I have had an OK day. I went to chruch this morning. It felt so good to be there. I saw 2 of my best friends from high school at church. It was so crazy because last week I was trying to look them up on Facebook and Myspace and could not find them. I just kept thinking about them, wondering how they were doing and just simply wanted to get in contact with them. It was GREAT to see them!! God works in such mysterious ways ;) I LOVE IT!!!!Travyn is doing absolutley wonderful. His blood counts are jumping right back up. The doctors are so immpressed with his progress and how well he is doing. The "Mucositis" is much better and he is not in as much pain. They stopped his feeds on wednesday because they thought it was making the "Mucositis" worst and was really hurting him. On Thursday He was playing in his swing and somehow Tray's little finger got under his feeding tube and he pulled it right out of his nose. I turned away for 2 seconds and I heard him fuss alittle so I looked down and the tube was hanging out of his nose. lol.... I called the nurse in his room as I was trying to hold in his tube. She said "OH YEAH! I forgot to tell you. In the notes it says to tell the Mother, if she wants us to remove the tube we can Untill they start his feeds again." I COULDN'T BELIEVE IT!!! I WAS SO HAPPY, So I pulled that sucker right out. It didn't hurt him one bit. HE LOVED not having it in his nose. It was like he was saying "Look Mom NO TUBES!!!" Im serious, he was so happy after. He was going crazy with his toys and smiling, talking and getting so excited it straight pooped him out. He passed out in his swing. We are so happy to see him doing so well and we feel so blessed on his progess. They did have to put his feeding tube back in yesterday but thats OK! He is still happy and doing great. Tomorrow is a BIG day for my little fighter. Since his blood count is back up they are going to take Stem Cells out of his Bone Marrow and harvest (freeze) them. So when its time for his Bone Marrow Transplant they will put them back in his blood. This procedure can be pretty painful for Travyn, but I will be right by his side the whole time. I can actually hold him while they are doing it. They put an I.V. in his groind and his blood will run through a machine and the machine will separate his stem cells from his blood. I know! its amazing what technology has to offer us these days. We are so thankful that my little boy gets to have this procedure done because it can do wonders for Cancer patients!!!! I will update you tomorrow on how it goes. Other then that things are going great. For me, im having my good days and bad. Today has been rough but tomorrow is a new day!!! Your prayers have all been heared and we are continuing to see miracles in my Precious Little Boys life. He is SOOO Brave and Strong!! God has him under his wing and isn't letting go until he is well. :)
Thanks for all your love and Support!!! Your prayers are very much appreciated. Please keep them coming!!! We love you so much, and could not do this without each and everyone of you. God Bless You!!!
Info on St. Baldricks Fundraiser
To all who we love!!!!
Check out this Webpage!http://www.stbaldricks.org/home/referral.php?Ref=L2tpZHMva2lkX2luZm8ucGhwP0tpZElEPTE5NTg=Hey Guys, Travyn Shae Sinclair is being Honored in this special Cancer Awareness Foundation called "St. Baldricks" Check out Tray's story on here and please come and support Travyn our little Fighter!!!! It will be held on Saturday, March 14th at Club 90, from 12:00- 4:00. Our Team Name is "The Travynators" ;-) It will be alot of fun, BRING YOUR KIDS!!!!!
"Be Brave and Shave"
Love,
Whitney Sinclair
Check out this Webpage!http://www.stbaldricks.org/home/referral.php?Ref=L2tpZHMva2lkX2luZm8ucGhwP0tpZElEPTE5NTg=Hey Guys, Travyn Shae Sinclair is being Honored in this special Cancer Awareness Foundation called "St. Baldricks" Check out Tray's story on here and please come and support Travyn our little Fighter!!!! It will be held on Saturday, March 14th at Club 90, from 12:00- 4:00. Our Team Name is "The Travynators" ;-) It will be alot of fun, BRING YOUR KIDS!!!!!
"Be Brave and Shave"
Love,
Whitney Sinclair
Friday, March 6, 2009
FUNDRAISER UPDATE!
I am just writing to update everyone and let you know that the Dodgeball game will be March 27 @ 6:00 and it will be at the Dixie Center. So make sure you come! : )
FUNDRAISER: MARCH 27, 2009-PLEASE COME AND BRING YOUR FRIENDS!
Hey everyone! I just wanted to let you know about a fundraiser that has been set up here in St. George for Travyn. A local girl that was the capton of the Dixie Basketball team has set up a Fundraiser for Travyn on March 27th. Its a Dodgeball Compeition. Its $4.00 per person and 6 people are in one team so $20.00 a team. Spread the word and come play! Everyone is invited, Its just $4.00 to play. and then all the money they earn will go to Travyn's fund. The young lady who thought of this has never met Whitney or Travyn, she just heard about their story and wanted to do something to help out. What an amazing and thoughtful thing to do! So be a good sport and make sure to come! I'm not sure at the moment the location or time of the dodgeball game but I will post it as soon as I do. Thanks again to everyone one who has been so thoughtful in helping support Travyn and his fight against cancer.
Sincerely, Amanda (Steele) Jennings
Hey everyone! I just wanted to let you know about a fundraiser that has been set up here in St. George for Travyn. A local girl that was the capton of the Dixie Basketball team has set up a Fundraiser for Travyn on March 27th. Its a Dodgeball Compeition. Its $4.00 per person and 6 people are in one team so $20.00 a team. Spread the word and come play! Everyone is invited, Its just $4.00 to play. and then all the money they earn will go to Travyn's fund. The young lady who thought of this has never met Whitney or Travyn, she just heard about their story and wanted to do something to help out. What an amazing and thoughtful thing to do! So be a good sport and make sure to come! I'm not sure at the moment the location or time of the dodgeball game but I will post it as soon as I do. Thanks again to everyone one who has been so thoughtful in helping support Travyn and his fight against cancer.
Sincerely, Amanda (Steele) Jennings
Thursday, March 5, 2009
Cant Sleep!!!!
Posted 12 hours ago
Its about 3:30 in the morning and I CANNOT sleep for the life of me!! My mind is running a hundred miles per hour. I came home from the hospital around 10:30 and I was so down. My heart was just aching so bad for my son. He had a great day with his G-pa today, while I ran some errons. But, tonight Tray just wasn't feeling to good. I gave him a bath and changed his Central Line dressing. Tray LOVES his baths, but not tonight. He was screaming and crying like he was in so much pain or somthing, and it just broke my heart. I just wish so bad, that I could take all his pain and everything this little man has gone through and deal with it for him. I cant help to cry writing this update because Im so hurt and heart broken that my PRECIOUS baby boy has to go through this. I am accepting why Tray is having to go through this and accept that its Gods plan. But some days I dont exactly understand WHY?? Why my little boy????...(If that makes any sense) When hard trials happens to us like this, we may not completly understand why they are happening. But, later down the road I will understand why my son had cancer and had to go through what he did at such a young age. And I know I will be a much stronger Women and a better Mom because of it.... I just needed to come let this all out you guys!!!One of my friends on here always writes me such uplifting messages. She can relate with me alot because her son had cancer as well and has been through it all. Her son is "CANCER FREE" today and that encourages me sooo much not to give up hope!!!!! In one of her messages she said "when you feel like you are at the end of your rope!! TIE A KNOT". And thats exactly how I feel tonight. I feel like i am at the end of my rope, But I tied that knot and im hanging on tight because I WILL NOT give up hope or faith that my son will fight this. MIRACLES DO HAPPEN and I beieve that with all my heart..(Thanks Nonie)I love my son so much and just hate seeing what he has gone through. I never imagined how much I could love and care for someone so much in my life...IT'S AN AMAZING FEELING!!!! My son is my life, my rock AND MY LITTLE 6 MONTH OLD BABY!! He keeps me sain. I will do anything for my baby...AND THATS WHY IM HANGING ON TIGHT UNTIL HE GETS THROUGH THIS!!!!!!!!!! I WILL BE RIGHT BY YOUR SIDE SWEETIE, MOMMY IS RIGHT HERE AND ISN'T GOING ANYWHERE UNTIL YOUR WELL.... :)I just look at him and am so proud of him for hangin so tough. He is so brave and he is OUR hero!!! TRAVYN IS DETERMINED TO GET WELL!!! I CAN FEEL IT IN MY HEART!!!!
Well, thanks for letting me vent and let it out. I feel so much better now. Im gonna go try and get some sleep.
AND TO EVERYONE,THANK YOU SOOOO MUCH FOR YOUR MESSAGES. EACH AND EVERYONE OF THEM GIVE ME STRENGTH AND ENCOURAGMENT......THANK YOU SO MUCH!!! LOVE YOU ALL, MORE THEN YOU WOULD EVER KNOW..
Posted 12 hours ago
Its about 3:30 in the morning and I CANNOT sleep for the life of me!! My mind is running a hundred miles per hour. I came home from the hospital around 10:30 and I was so down. My heart was just aching so bad for my son. He had a great day with his G-pa today, while I ran some errons. But, tonight Tray just wasn't feeling to good. I gave him a bath and changed his Central Line dressing. Tray LOVES his baths, but not tonight. He was screaming and crying like he was in so much pain or somthing, and it just broke my heart. I just wish so bad, that I could take all his pain and everything this little man has gone through and deal with it for him. I cant help to cry writing this update because Im so hurt and heart broken that my PRECIOUS baby boy has to go through this. I am accepting why Tray is having to go through this and accept that its Gods plan. But some days I dont exactly understand WHY?? Why my little boy????...(If that makes any sense) When hard trials happens to us like this, we may not completly understand why they are happening. But, later down the road I will understand why my son had cancer and had to go through what he did at such a young age. And I know I will be a much stronger Women and a better Mom because of it.... I just needed to come let this all out you guys!!!One of my friends on here always writes me such uplifting messages. She can relate with me alot because her son had cancer as well and has been through it all. Her son is "CANCER FREE" today and that encourages me sooo much not to give up hope!!!!! In one of her messages she said "when you feel like you are at the end of your rope!! TIE A KNOT". And thats exactly how I feel tonight. I feel like i am at the end of my rope, But I tied that knot and im hanging on tight because I WILL NOT give up hope or faith that my son will fight this. MIRACLES DO HAPPEN and I beieve that with all my heart..(Thanks Nonie)I love my son so much and just hate seeing what he has gone through. I never imagined how much I could love and care for someone so much in my life...IT'S AN AMAZING FEELING!!!! My son is my life, my rock AND MY LITTLE 6 MONTH OLD BABY!! He keeps me sain. I will do anything for my baby...AND THATS WHY IM HANGING ON TIGHT UNTIL HE GETS THROUGH THIS!!!!!!!!!! I WILL BE RIGHT BY YOUR SIDE SWEETIE, MOMMY IS RIGHT HERE AND ISN'T GOING ANYWHERE UNTIL YOUR WELL.... :)I just look at him and am so proud of him for hangin so tough. He is so brave and he is OUR hero!!! TRAVYN IS DETERMINED TO GET WELL!!! I CAN FEEL IT IN MY HEART!!!!
Well, thanks for letting me vent and let it out. I feel so much better now. Im gonna go try and get some sleep.
AND TO EVERYONE,THANK YOU SOOOO MUCH FOR YOUR MESSAGES. EACH AND EVERYONE OF THEM GIVE ME STRENGTH AND ENCOURAGMENT......THANK YOU SO MUCH!!! LOVE YOU ALL, MORE THEN YOU WOULD EVER KNOW..
Wednesday, March 4, 2009
YOU ARE ALL INVITED!!!! PLEASE COME SUPPORT TRAVYN!!!
Posted 6 hours ago
HEY GUYS,
I wanted to give you guys some more info about the Cancer Awarness Event called "ST. BALDRICKS" The gentlemen who runs the event for Salt Lake City saw Travyn's story on the news and contacted the news anchor who interviewed me to see if he could possibly get my contact information. The news anchor called me and wanted to make sure it was OK if she gave this gentlemen my number. She explained to me that he puts together this event every year to raise money for The Childhood Cancer Research. She then told me that he wanted to honor Travyn in this event. I gave the OK to release my number to him. He called me that night and explained in detail about this awesome event. His daughter passed away from AT/RT and thats what motivated him to get out there and try and raise money to find a cure for this awful disease.
The Event will be held at "Club 90" in Sandy on Saturday March, 14th, from 12:00-4:00There will be Food, Drinks, Irish Dancers, Bag Pipe Players, Car Smash a Raffle and so much more.OH, AND MEN AND WOMEN VOLUNTER TO SHAVE THERE HEADS TO SUPPORT CHEMO PATIENTS!!! CUTE HUH??
PLEASE COME AND SUPPORT MY LITTLE BOY AND ALL OF THE OTHER CHILDREN WHO ,ARE AFFLICTED WITH THIS AWFUL DISEASE.
Our Team name is "THE TRAYVINATORS" lol
So when you come, say your with the team "TRAVINATORS".
Thanks everybody!! hope to see you there.
LOVE U ALL.
Posted 6 hours ago
HEY GUYS,
I wanted to give you guys some more info about the Cancer Awarness Event called "ST. BALDRICKS" The gentlemen who runs the event for Salt Lake City saw Travyn's story on the news and contacted the news anchor who interviewed me to see if he could possibly get my contact information. The news anchor called me and wanted to make sure it was OK if she gave this gentlemen my number. She explained to me that he puts together this event every year to raise money for The Childhood Cancer Research. She then told me that he wanted to honor Travyn in this event. I gave the OK to release my number to him. He called me that night and explained in detail about this awesome event. His daughter passed away from AT/RT and thats what motivated him to get out there and try and raise money to find a cure for this awful disease.
The Event will be held at "Club 90" in Sandy on Saturday March, 14th, from 12:00-4:00There will be Food, Drinks, Irish Dancers, Bag Pipe Players, Car Smash a Raffle and so much more.OH, AND MEN AND WOMEN VOLUNTER TO SHAVE THERE HEADS TO SUPPORT CHEMO PATIENTS!!! CUTE HUH??
PLEASE COME AND SUPPORT MY LITTLE BOY AND ALL OF THE OTHER CHILDREN WHO ,ARE AFFLICTED WITH THIS AWFUL DISEASE.
Our Team name is "THE TRAYVINATORS" lol
So when you come, say your with the team "TRAVINATORS".
Thanks everybody!! hope to see you there.
LOVE U ALL.
Tuesday March 3, 2009
Posted 19 hours ago
Today is Tuesday and its about 8:30 at night. And let me tell you, Travyn is doing SO much better then Thursday night. OH MY GOSH! that was scary!! The blood cultures came back and he did have an infection. They put him on antibiotics right away just in case, and sure enough the cultures grew an infection called "Psuedomonas Aeruginosa" which is a blood infection. They got the infection under control so fast with antibiotics that it didn't get any worse. They have been watching him very closly and taking his temp every hour just to make sure the infection doesn't come back. A high fever is one of the most common symptons of infections with chemo patients. But, my little Fighter has faught this infection and is doing so good. He has a really bad diaper rash right now because of the Chemo. The Chemo eats the good cells and he got "Mucositis" they are sores that go from the mouth all the way through the "Gastrointestinal Tract". They are suppose to be really painful, so he needs his pain meds on schedule, or he is not a happy camper. Travyn is so strong and is dealing with this awful disease better then any baby out there. ;) I honestly dont think I could ever go through what he has gone through. Its been a rough ride, but he is hanging tough and is determined to get well, I JUST KNOW IT!!! Jesus healed the blind and sick, IF THEY BELIEVED HE COULD HEAL THEM. And let me tell you, Travyn and I STRONGLY believe that God will heal and take this cancer from his little body so he can live a "CANCER FREE" life!!!! Travyn is doing awesome though and still smiles when he see's me or any of my family (and some Nurses). Travyn is wrapped up like a burrito right now ready for bed. He loves to be wrapped real tight!!!! lol
THANKS FOR YOUR LOVE AND SUPPORT EVERYONE!! YOUR PRAYERS HAVE BEEN HEARD AND WE HAVE SEEN MIRACLES IN MY BABY'S LIFE ALREADY!!!!!! THANK YOU SO MUCH!
LOVE YOU ALL!!!
"PRAY 4 TRAY"
Travyn is being honored at a Head shaving event for childhood cancer, called "St. Baldricks" It going to be held at club 90 on March 14, at 12:00 pm. Men and Women who VOLUNTER shave there heads to support chemo patients.Please come and support Travyn!!!IT WILL BE ALOT OF FUN!!!!!!
Posted 19 hours ago
Today is Tuesday and its about 8:30 at night. And let me tell you, Travyn is doing SO much better then Thursday night. OH MY GOSH! that was scary!! The blood cultures came back and he did have an infection. They put him on antibiotics right away just in case, and sure enough the cultures grew an infection called "Psuedomonas Aeruginosa" which is a blood infection. They got the infection under control so fast with antibiotics that it didn't get any worse. They have been watching him very closly and taking his temp every hour just to make sure the infection doesn't come back. A high fever is one of the most common symptons of infections with chemo patients. But, my little Fighter has faught this infection and is doing so good. He has a really bad diaper rash right now because of the Chemo. The Chemo eats the good cells and he got "Mucositis" they are sores that go from the mouth all the way through the "Gastrointestinal Tract". They are suppose to be really painful, so he needs his pain meds on schedule, or he is not a happy camper. Travyn is so strong and is dealing with this awful disease better then any baby out there. ;) I honestly dont think I could ever go through what he has gone through. Its been a rough ride, but he is hanging tough and is determined to get well, I JUST KNOW IT!!! Jesus healed the blind and sick, IF THEY BELIEVED HE COULD HEAL THEM. And let me tell you, Travyn and I STRONGLY believe that God will heal and take this cancer from his little body so he can live a "CANCER FREE" life!!!! Travyn is doing awesome though and still smiles when he see's me or any of my family (and some Nurses). Travyn is wrapped up like a burrito right now ready for bed. He loves to be wrapped real tight!!!! lol
THANKS FOR YOUR LOVE AND SUPPORT EVERYONE!! YOUR PRAYERS HAVE BEEN HEARD AND WE HAVE SEEN MIRACLES IN MY BABY'S LIFE ALREADY!!!!!! THANK YOU SO MUCH!
LOVE YOU ALL!!!
"PRAY 4 TRAY"
Travyn is being honored at a Head shaving event for childhood cancer, called "St. Baldricks" It going to be held at club 90 on March 14, at 12:00 pm. Men and Women who VOLUNTER shave there heads to support chemo patients.Please come and support Travyn!!!IT WILL BE ALOT OF FUN!!!!!!
Friday 2/27/2009
Posted Feb 27, 2009 8:55pm
Today is Friday and its about 6:00 at night. I cant even tell you how exhausted I am from being here at the hospital 24/7. Its like we are practicaly living here. But, thats OK I will do anything for my sweet baby. If I had to live in a cardboard box underneath a freeway pass for Travyn I would. Hospitals can emotionally and physically drain you. My heart goes out to these sweet children that are sick at Primary Childrens and can't really live a real childhood. But Primary Childrens has activities, crafts, and even video games. They want kids to know the hospital can be fun and not scary. Anyways, about My precious son Travyn. he is doing alot better then earlier. WOW!!! it sure was a tough and scary night. It first started off going to dinner and then my sister and I went to the Raskel Flatts concert, which was so much fun! The concert was put together amazing. (Thanks Linds) Its always nice getting out and taking a little break. When I got home it was about 10:30. I was so exhausted that right when I layed on my mom's bed, I was out!!! Everynight before I go to bed, I call Tray's nurse just to make sure everything is going OK for piece of mind, so I can sleep knowing he is doing good. Well, last night I fell asleep before calling Tray's nurse, so my mom called for me. I guess one of the On call doctors answered and my mom just simply asked how Tray was doing. The doctor then expressed his high concerns about Travyns 104'deg fever and how his heart rate was extremely high (over 200) The doctor said he was breathing really hard and sounded like he was grunting. He was concerned he could possibly have pneumonia. They did a chest x-ray and his lungs looked fine. Well, I woke up right at 2:00 am, and I had the worst feeling somthing was wrong with Tray. It was weird!! When I sleep at my moms house, I always sleep in her bed with her. Well, when I woke up she wasn't in bed and I could hear her talking on the phone in the guest bedroom. I walked in there and asked what was wrong. She said she was on the phone with Jayson (My Boyfriend) When she got off the phone, she told me what was going on. She said she called to see how Travyn was doing and the doctors told her he was not doing very well. But was doing alot better and his fever broke. I was all worried but my mom said everything was under control. When I was getting back in bed it was about 3:00 am and I wanted to call Tray's nurse for myself just to make sure he was still doing OK. When I called, the charge nurse answered and I asked for Trays nurse but she was busy in Trays room. She said Trays fever came back and was getting very sick and nauseated. I felt SO bad that I wasn't there to consoul and comfort my baby while he was sick. So i got dressed and went up to the hospital. I got to Primary Childrens about 4 am, and by then my poor little boy was asleep with all his cloths off besides his diaper. They had 3 cool packs around his head to keep him cool cause he was sooo warm and red from his fever. His feet were Ice cold and really pale. The doctor said thats a sign of infection in his body, along with the fever and high heart rate. They took some blood samples to culture to see if any bacteria would grow for infection. The infection specialists are pretty sure he has an infection from his own body bacteria. Which is very common when on Chemo. But, We haven't received the infections results back quite yet. I will let you know what they say as soon as they come back.
THANK YOU FOR YOUR PRAYERS EVERYONE!!! PLEASE CONTINUE TO PRAY, I KNOW HEAVENLY FATHER HEARS EACH AND EVERY PRAYER. AND YOU'LL NEVER KNOW HOW MUCH THEY MEAN TO US.
LOVE YOU ALL SO MUCH!!!!
GOD BLESS YOU!!
Posted Feb 27, 2009 8:55pm
Today is Friday and its about 6:00 at night. I cant even tell you how exhausted I am from being here at the hospital 24/7. Its like we are practicaly living here. But, thats OK I will do anything for my sweet baby. If I had to live in a cardboard box underneath a freeway pass for Travyn I would. Hospitals can emotionally and physically drain you. My heart goes out to these sweet children that are sick at Primary Childrens and can't really live a real childhood. But Primary Childrens has activities, crafts, and even video games. They want kids to know the hospital can be fun and not scary. Anyways, about My precious son Travyn. he is doing alot better then earlier. WOW!!! it sure was a tough and scary night. It first started off going to dinner and then my sister and I went to the Raskel Flatts concert, which was so much fun! The concert was put together amazing. (Thanks Linds) Its always nice getting out and taking a little break. When I got home it was about 10:30. I was so exhausted that right when I layed on my mom's bed, I was out!!! Everynight before I go to bed, I call Tray's nurse just to make sure everything is going OK for piece of mind, so I can sleep knowing he is doing good. Well, last night I fell asleep before calling Tray's nurse, so my mom called for me. I guess one of the On call doctors answered and my mom just simply asked how Tray was doing. The doctor then expressed his high concerns about Travyns 104'deg fever and how his heart rate was extremely high (over 200) The doctor said he was breathing really hard and sounded like he was grunting. He was concerned he could possibly have pneumonia. They did a chest x-ray and his lungs looked fine. Well, I woke up right at 2:00 am, and I had the worst feeling somthing was wrong with Tray. It was weird!! When I sleep at my moms house, I always sleep in her bed with her. Well, when I woke up she wasn't in bed and I could hear her talking on the phone in the guest bedroom. I walked in there and asked what was wrong. She said she was on the phone with Jayson (My Boyfriend) When she got off the phone, she told me what was going on. She said she called to see how Travyn was doing and the doctors told her he was not doing very well. But was doing alot better and his fever broke. I was all worried but my mom said everything was under control. When I was getting back in bed it was about 3:00 am and I wanted to call Tray's nurse for myself just to make sure he was still doing OK. When I called, the charge nurse answered and I asked for Trays nurse but she was busy in Trays room. She said Trays fever came back and was getting very sick and nauseated. I felt SO bad that I wasn't there to consoul and comfort my baby while he was sick. So i got dressed and went up to the hospital. I got to Primary Childrens about 4 am, and by then my poor little boy was asleep with all his cloths off besides his diaper. They had 3 cool packs around his head to keep him cool cause he was sooo warm and red from his fever. His feet were Ice cold and really pale. The doctor said thats a sign of infection in his body, along with the fever and high heart rate. They took some blood samples to culture to see if any bacteria would grow for infection. The infection specialists are pretty sure he has an infection from his own body bacteria. Which is very common when on Chemo. But, We haven't received the infections results back quite yet. I will let you know what they say as soon as they come back.
THANK YOU FOR YOUR PRAYERS EVERYONE!!! PLEASE CONTINUE TO PRAY, I KNOW HEAVENLY FATHER HEARS EACH AND EVERY PRAYER. AND YOU'LL NEVER KNOW HOW MUCH THEY MEAN TO US.
LOVE YOU ALL SO MUCH!!!!
GOD BLESS YOU!!
First Cycle Of Chemotherapy COMPLETE!!!
Posted Feb 22, 2009 1:37pm
Its official everyone!! Travyn finished his first cycle of Chemo on Friday... HE DID IT!!! Thats my Brave little boy!! On friday at 10 am was his last dose of the Vincristine. That was one of the first doses he had. My sweet baby boy has been doing so good considering. He has had his good times and bad times which is expected. Yesterday, Travyn spent the morning with his G-P (Wayne) and Ahma (Debbie) while Jayson and I went to Lunch with his family. It was nice to get out and see the outside world. But I got to say I missed my baby so much and couldn't wait to get back to the hospital. When we arrived back at the hospital. My little man was laying in his Ahma's arms asleep. It was so precious to see how cozy and comfortable he looked. It's such a relief to see him comfortable then to see him when he is sick and is trying to throw up. Its the saddest and one of the most hardest things I have ever seen in my life is when my little boy is throwing up. He has NO idea whats going on and when he is dry heaving, I have to really take a deep breath and sucked it up to not cry and to tell him "Its ok hunny" "everything is going to be ok" Those days are the bad days but god gets us through them and i am very grateful for that. But on a good note!! My baby Tray is smiling and talking just like any other 5 month old. The Chemo seems to not even Phase him. He is so freakin tough, I really dont know how he is doing this and being such a brave little fellow. I know god is right there just holding him and taking the pain away. I belive god wont let babies suffer too much and is always by there side when going through somthing like this or simply just when a baby is sad. I belive babies are so close to god becuase they are so new and not too long ago they left hevenely father to come be with their family here on this earth. Life is so AMAZING what it has to offer us. Its hard not to take things for granted but when you get a wake up call like this. You realize what you have and what you can lose in a blink of an eye. So cherish what you got, love what you want and dont give up hope with what you dont have cause what you think becomes a reality. and your thoughts and feeling become real. I truly believe that with all my heart and thats why I continue to stay positive for my boy and cant stop thinking about the day they prnounce Travyn "CANCER FREE" I have a vision of that day and that vision doesn't ever leave my mind.
Thanks for all your love and support everyone. I love you all so much,
I know times are tough right now and to let go of a dime is rough. So to those of you that have sacrificed and donated to travyn's Donation Fund. I want to personally thank you from the bottom of my heart. You have NO IDEA how much it has helped. God Bless you!!!
WE love you all!!!Thank you for your needed, beautiful prayers!!!!
Love,Whitney, Jayson, Travyn and The Sinclair and Chapman Family.
Posted Feb 22, 2009 1:37pm
Its official everyone!! Travyn finished his first cycle of Chemo on Friday... HE DID IT!!! Thats my Brave little boy!! On friday at 10 am was his last dose of the Vincristine. That was one of the first doses he had. My sweet baby boy has been doing so good considering. He has had his good times and bad times which is expected. Yesterday, Travyn spent the morning with his G-P (Wayne) and Ahma (Debbie) while Jayson and I went to Lunch with his family. It was nice to get out and see the outside world. But I got to say I missed my baby so much and couldn't wait to get back to the hospital. When we arrived back at the hospital. My little man was laying in his Ahma's arms asleep. It was so precious to see how cozy and comfortable he looked. It's such a relief to see him comfortable then to see him when he is sick and is trying to throw up. Its the saddest and one of the most hardest things I have ever seen in my life is when my little boy is throwing up. He has NO idea whats going on and when he is dry heaving, I have to really take a deep breath and sucked it up to not cry and to tell him "Its ok hunny" "everything is going to be ok" Those days are the bad days but god gets us through them and i am very grateful for that. But on a good note!! My baby Tray is smiling and talking just like any other 5 month old. The Chemo seems to not even Phase him. He is so freakin tough, I really dont know how he is doing this and being such a brave little fellow. I know god is right there just holding him and taking the pain away. I belive god wont let babies suffer too much and is always by there side when going through somthing like this or simply just when a baby is sad. I belive babies are so close to god becuase they are so new and not too long ago they left hevenely father to come be with their family here on this earth. Life is so AMAZING what it has to offer us. Its hard not to take things for granted but when you get a wake up call like this. You realize what you have and what you can lose in a blink of an eye. So cherish what you got, love what you want and dont give up hope with what you dont have cause what you think becomes a reality. and your thoughts and feeling become real. I truly believe that with all my heart and thats why I continue to stay positive for my boy and cant stop thinking about the day they prnounce Travyn "CANCER FREE" I have a vision of that day and that vision doesn't ever leave my mind.
Thanks for all your love and support everyone. I love you all so much,
I know times are tough right now and to let go of a dime is rough. So to those of you that have sacrificed and donated to travyn's Donation Fund. I want to personally thank you from the bottom of my heart. You have NO IDEA how much it has helped. God Bless you!!!
WE love you all!!!Thank you for your needed, beautiful prayers!!!!
Love,Whitney, Jayson, Travyn and The Sinclair and Chapman Family.
3rd dose of Chemo, continuing Cycle 1
Posted Feb 18, 2009 3:15pm
Last night at 7:00 they gave Travyn his 3rd dose of Chemo. It was a repeat of the night before. The VP-16 and the Cyclophosphamide. The VP-16 was an hour drip infusion. VP-16 can make the heart rate drop very low. If it drops to low they would have to stop the Chemo and give him saline through his central line to add volume to his blood. so they had to watch him very closly. We are very grateful that it went smoothly and they didn't have to stop the chemo. The Cyclophosphamide ran over an hour drip infusion as well. This kind of Chemo is very damaging to the kidneys and bladder. But like I said in my last update, they mix the Chemo with a medicine called "Mesna" which coats the bladder and protects the kidneys becuase it breaks down the cells in the bladder and can make it bleed. So they watch for blood in his urine. They give him an additional 3 doses of the Mesna after the Chemo is finished. That went very smoothly as well. No blood in urine and vitals were stable. He was talking and smiling during the infusions. Its like it wasn't phasing him at all. THATS MY FIGHTER FOR YA!! My friend Ashley gave him a Bib that says "RuFF & Tough" on it. SO I put it on him while he was getting his Chemo. The whole time he kept trying to eat the bib, it was so cute!! :) Tonight he will get another dose of Cyclophosphamide but not the VP-16. Then tomorrow he will get a different kind of Chemo called "Sisplatin" then its a wrap for his official first cycle of Chemotherapy. His blood count should be dropping pretty low, and this is the time when we need to be very carful with him and getting in contact with any germs. So extra good hand washing, possibly wearing masks, and im only letting immediate family in his room besides his nurses. Its just too scary how easily he can catch any virus or infections. I have to protect my baby the best I can. They said it can take about 3 weeks for his blood count to come back up. And once its back up they will start his next cycle of Chemo which will be alot more aggressive. So please please plese keep praying for my baby!!! If it wasn't for God and all your prayers, I really dont think I could be getting through this the way I am. I have so much faith in God and I know he is going to heal my baby.. I know Travyn will grow up and live a CANCER FREE Life, I just know it!!! My Good friend Julie, tells me to close my eyes and to actually imagine handing my sweet little boy over to God and to imagine God holding his hands and arms out to take him and hold him, comfort him and to HEAL him. I think about this everyday and it really helps me and gives me the faith not to give up hope. I imagine handing over all my stress's and worries over to God like: Family, finances, my relationship and just life it self. And when im alone I even say out loud. "Here Lord please take these". "I am giving these to you to deal with" "Im turning them over to you" somtimes Im crying and sometimes im not. But, I have turned Travyn's cancer over to the care of God so he can get rid of it. I believe if you put your confidence and faith into God. Then God will put his confidence and faith into you. And we all know how powerful and amazing that is. Trust in the lord, be obediant and love one another. Love you all very much!!!!
THANKS FOR ALL YOUR LOVE AND SUPPORT.....PLEASE KEEP MY PRECIOUS BABY TRAVYN IN YOUR PRAYERS.......GOD BLESS YOU ALL!!!!
Posted Feb 18, 2009 3:15pm
Last night at 7:00 they gave Travyn his 3rd dose of Chemo. It was a repeat of the night before. The VP-16 and the Cyclophosphamide. The VP-16 was an hour drip infusion. VP-16 can make the heart rate drop very low. If it drops to low they would have to stop the Chemo and give him saline through his central line to add volume to his blood. so they had to watch him very closly. We are very grateful that it went smoothly and they didn't have to stop the chemo. The Cyclophosphamide ran over an hour drip infusion as well. This kind of Chemo is very damaging to the kidneys and bladder. But like I said in my last update, they mix the Chemo with a medicine called "Mesna" which coats the bladder and protects the kidneys becuase it breaks down the cells in the bladder and can make it bleed. So they watch for blood in his urine. They give him an additional 3 doses of the Mesna after the Chemo is finished. That went very smoothly as well. No blood in urine and vitals were stable. He was talking and smiling during the infusions. Its like it wasn't phasing him at all. THATS MY FIGHTER FOR YA!! My friend Ashley gave him a Bib that says "RuFF & Tough" on it. SO I put it on him while he was getting his Chemo. The whole time he kept trying to eat the bib, it was so cute!! :) Tonight he will get another dose of Cyclophosphamide but not the VP-16. Then tomorrow he will get a different kind of Chemo called "Sisplatin" then its a wrap for his official first cycle of Chemotherapy. His blood count should be dropping pretty low, and this is the time when we need to be very carful with him and getting in contact with any germs. So extra good hand washing, possibly wearing masks, and im only letting immediate family in his room besides his nurses. Its just too scary how easily he can catch any virus or infections. I have to protect my baby the best I can. They said it can take about 3 weeks for his blood count to come back up. And once its back up they will start his next cycle of Chemo which will be alot more aggressive. So please please plese keep praying for my baby!!! If it wasn't for God and all your prayers, I really dont think I could be getting through this the way I am. I have so much faith in God and I know he is going to heal my baby.. I know Travyn will grow up and live a CANCER FREE Life, I just know it!!! My Good friend Julie, tells me to close my eyes and to actually imagine handing my sweet little boy over to God and to imagine God holding his hands and arms out to take him and hold him, comfort him and to HEAL him. I think about this everyday and it really helps me and gives me the faith not to give up hope. I imagine handing over all my stress's and worries over to God like: Family, finances, my relationship and just life it self. And when im alone I even say out loud. "Here Lord please take these". "I am giving these to you to deal with" "Im turning them over to you" somtimes Im crying and sometimes im not. But, I have turned Travyn's cancer over to the care of God so he can get rid of it. I believe if you put your confidence and faith into God. Then God will put his confidence and faith into you. And we all know how powerful and amazing that is. Trust in the lord, be obediant and love one another. Love you all very much!!!!
THANKS FOR ALL YOUR LOVE AND SUPPORT.....PLEASE KEEP MY PRECIOUS BABY TRAVYN IN YOUR PRAYERS.......GOD BLESS YOU ALL!!!!
2nd dose of Chemo, continuing Cycle 1.
Posted Feb 16, 2009 7:34pm
Today is Monday 2/16/2009. My Brave little guy is such a Trooper. He is doing really good today considering him being on Chemo. When I got to the hospital Travyn was being so cute (like always) He was so happy to see me. He started kicking his legs and smiling. Its such a good feeling that he loves me so much and WAANTS me to hold him. Its just what i needed, this morning was a little rough and it made my day when I saw him.
So, today he will be receiving his 2nd dose of Chemotherapy. We are still in the same cycle, just 2nd dose of Chemo. Which are 2 completly different types of Chemo. The 1st one is called: "VP-16" (Etoposied) which will run over an hour drip infusion. They will watch his Blood Pressure very closly cause it can make his blood pressure DROP really low. If it drops to much they will stop his infusion of VP-16 and then immediately give him a bolis of Saline. Saline adds volume to his blood, which will level out his blood pressure. They will also watch for Nausea.The 2nd type of Chemo is called "Cyclophosphamide" That will run over an hour drip infusion. This type of Chemo is very damaging to the bladder. They mix a medicine called "Mesna" in the Chemo, so it protects and coats the bladder. It breaks down the cells in the bladder and will make his bladder bleed. So they will watch his urine to make sure there is no blood. Its very rare for this to happen but is possible. They will give him 4 additional doses of "Mesna" after the "Cyclophosphamide"(chemo)infusion is complete. The 1st dose of Mesna will run over 3 hours and then the additional 3 doses will run for 15 minutes long every 3 hours. They will also watch for nausea.They will be changing his diapers every 2 hours so that his urine doesn't sit on his skin. His urine can iritate his skin. They will be watching his urine output to make sure its exiting his body. He will get the exact same types of Chemo tomorrow. This time he will be really nauseated and fussy. But thats OK. I'll be here to comfort him and love him....
Thanks for all your love and support!!!! especially your prayers!!!!We are very grateful for them all.
Love you so much.
Posted Feb 16, 2009 7:34pm
Today is Monday 2/16/2009. My Brave little guy is such a Trooper. He is doing really good today considering him being on Chemo. When I got to the hospital Travyn was being so cute (like always) He was so happy to see me. He started kicking his legs and smiling. Its such a good feeling that he loves me so much and WAANTS me to hold him. Its just what i needed, this morning was a little rough and it made my day when I saw him.
So, today he will be receiving his 2nd dose of Chemotherapy. We are still in the same cycle, just 2nd dose of Chemo. Which are 2 completly different types of Chemo. The 1st one is called: "VP-16" (Etoposied) which will run over an hour drip infusion. They will watch his Blood Pressure very closly cause it can make his blood pressure DROP really low. If it drops to much they will stop his infusion of VP-16 and then immediately give him a bolis of Saline. Saline adds volume to his blood, which will level out his blood pressure. They will also watch for Nausea.The 2nd type of Chemo is called "Cyclophosphamide" That will run over an hour drip infusion. This type of Chemo is very damaging to the bladder. They mix a medicine called "Mesna" in the Chemo, so it protects and coats the bladder. It breaks down the cells in the bladder and will make his bladder bleed. So they will watch his urine to make sure there is no blood. Its very rare for this to happen but is possible. They will give him 4 additional doses of "Mesna" after the "Cyclophosphamide"(chemo)infusion is complete. The 1st dose of Mesna will run over 3 hours and then the additional 3 doses will run for 15 minutes long every 3 hours. They will also watch for nausea.They will be changing his diapers every 2 hours so that his urine doesn't sit on his skin. His urine can iritate his skin. They will be watching his urine output to make sure its exiting his body. He will get the exact same types of Chemo tomorrow. This time he will be really nauseated and fussy. But thats OK. I'll be here to comfort him and love him....
Thanks for all your love and support!!!! especially your prayers!!!!We are very grateful for them all.
Love you so much.
Sunday 2/15/2009
Posted Feb 15, 2009 11:08pm
Its Sunday night and Im just relaxing with my Baby Tray after the funnest day i've had in a long time. My friends, Maegan and Sharee came from St. George today to see us. It was so good to see them. But it did make me a little homesick. We had a fun day though. We went Shopping and to Lunch. My friend Maegan is the biggest goof ball I have ever met, so when we get together we are Crazzzy Girls. And SHaree is so cute and little. :) Us three together have so much fun and thats what I've been needing for a long time, is to go out and hang with my girls. It felt so good to get out of the hospital and go play.I LOVE YOU MAEGAN AND SHAREE!!!!
About Travyn, He is doing alright. He was running a fever earlier today but they gave him some Tylenol and his fever went down. They took some blood to do a culture to check for any Infection. They process blood cultures on Chemo patients to check for any Infections when they start running a fever. They are very cautious with fevers when it comes to Chemo patients, because it can be alot more serious then somebody who is not on Chemo. He has been alot more fussy today then he has been in awhile. He is not taking his Binky like usual because when on Chemo you get these sores in your mouth and throat. They're like canker sores. So it hurts to suck on his bink. So we have to find other ways to console him and calm him down. We found a good way of calming him down without his bink and that is JAYSON singing to him!!! Tray absolutly loves it and will just looked at him like "WoW, Daddy you can sing too??" Its so cute and quite funny!! :) But you can tell my baby just doesn't feel good AT ALL. The nurse said the Methotrexate can make him very achy, weak, and nauseated. I hate seeing my little boy going through this. Its the hardest thing I have EVER gone through. My heart just breaks for him. They will check his urine tomorrow to see if the Methotrexate is completly out of his system and if it is, they will give him his next dose of Chemo. This dose will be alot stronger and more aggressive. Travyn is so strong and HE WILL get through this next dose just fine.. He is a fighter and I KNOW that this Chemo is TACKLING this awful, un-welcomed "C" word. I just know it. Yeah, I know he just started his first cycle, but the Chemo IS doing its job already and kicking the crap out of this disease. Tomorrow is a new day and it will be a good day!!! :)
Please keep praying for My Sweet Baby Boy!! PLEASE!!!
YOUR PRAYERS ARE NEEDED SO BAD RIGHT NOW!!!
Thank you all, for your love and awesome support!!! Thank you!!We love you all very much.God Bless u all!!!
May god be with, and shower you with his unconditional love, and help you in any area you may need help with. Amen.
Posted Feb 15, 2009 11:08pm
Its Sunday night and Im just relaxing with my Baby Tray after the funnest day i've had in a long time. My friends, Maegan and Sharee came from St. George today to see us. It was so good to see them. But it did make me a little homesick. We had a fun day though. We went Shopping and to Lunch. My friend Maegan is the biggest goof ball I have ever met, so when we get together we are Crazzzy Girls. And SHaree is so cute and little. :) Us three together have so much fun and thats what I've been needing for a long time, is to go out and hang with my girls. It felt so good to get out of the hospital and go play.I LOVE YOU MAEGAN AND SHAREE!!!!
About Travyn, He is doing alright. He was running a fever earlier today but they gave him some Tylenol and his fever went down. They took some blood to do a culture to check for any Infection. They process blood cultures on Chemo patients to check for any Infections when they start running a fever. They are very cautious with fevers when it comes to Chemo patients, because it can be alot more serious then somebody who is not on Chemo. He has been alot more fussy today then he has been in awhile. He is not taking his Binky like usual because when on Chemo you get these sores in your mouth and throat. They're like canker sores. So it hurts to suck on his bink. So we have to find other ways to console him and calm him down. We found a good way of calming him down without his bink and that is JAYSON singing to him!!! Tray absolutly loves it and will just looked at him like "WoW, Daddy you can sing too??" Its so cute and quite funny!! :) But you can tell my baby just doesn't feel good AT ALL. The nurse said the Methotrexate can make him very achy, weak, and nauseated. I hate seeing my little boy going through this. Its the hardest thing I have EVER gone through. My heart just breaks for him. They will check his urine tomorrow to see if the Methotrexate is completly out of his system and if it is, they will give him his next dose of Chemo. This dose will be alot stronger and more aggressive. Travyn is so strong and HE WILL get through this next dose just fine.. He is a fighter and I KNOW that this Chemo is TACKLING this awful, un-welcomed "C" word. I just know it. Yeah, I know he just started his first cycle, but the Chemo IS doing its job already and kicking the crap out of this disease. Tomorrow is a new day and it will be a good day!!! :)
Please keep praying for My Sweet Baby Boy!! PLEASE!!!
YOUR PRAYERS ARE NEEDED SO BAD RIGHT NOW!!!
Thank you all, for your love and awesome support!!! Thank you!!We love you all very much.God Bless u all!!!
May god be with, and shower you with his unconditional love, and help you in any area you may need help with. Amen.
Day After Chemo. 2/14/2009
Posted Feb 14, 2009 11:23pm
This morning Travyn got an MRI to see how the Tumor that couldn't be removed in surgery looked and to also to see if the fluid behind his incision has decreased. They said it has decrease a little but can take months to go down completly. But the Surgeons said it looked great.Today Tray has been doing OK. He got a little nauseated, so they gave him some Ativan to help with the nausea. They checked is Hemocrit Level (Red Blood Cells) and they were very low. His heart rate has been high which is a sign of a low Hemocrit Level. When the Hemocrit is low they call for a Blood Transfusion. So as im writing this, Tray is getting his transfusion. It will make him feel alot better. They also started giving him a Bolis of Lukovorin. Lukovorin pushes the Methotrxate out of his little body (Methotrexate is a Type of Chemo given yesterday)Its only suppose to stay in the infants/childrens body for 24 hours maximum. The longer it stays in his body the more damage it will do to his cells and kidneys. They will give him the Lukovorin through his NJ tube (feeding tube) every 6 hours and watch him closly to make sure it is exiting his body. They will keep checking his PH levels in his urine to montor the breaking up of the tumor so that it doesn't damage his Kidneys.
For what My little boy has gone through on a day to day basis and just starting Chemo. He is doing awesome. We attribute that to all the many prayers and blessings he has recieved from our dear friends and family.
TRAVYN IS A FIGHTER, HE IS STRONG, HE IS BRAVE, HE IS MY HERO AND MOST OF ALL MY LITTLE BOY IS DETERMINED. YOU CAN SEE IT IN HIS EYES...WHEN YOU LOOK DEEP INTO HIS BEAUTIFUL BLUE EYES, IT's LIKE THEY ARE TELLING ME "I AM GOING TO GET THROUGH THIS, AND I WILL FIGHT THIS MOM DONT YOU WORRY!!" (my dad said the same thing when he looks in his eyes)Im not trying to sound all cheesy but its true YOU CAN SEE HE IS DETERMINED TO GET BETTER AND WE ALL KNOW AND HAVE FAITH THAT HE WILL! I DONT CARE WHAT THE STATISTICS SAY OR THR PERCENTAGE RATE OF SURVIVORS OF THIS RARE CANCER BECAUSE MY LITTLE BOY ISN'T JUST ANY OTHER LITTLE BOY. HE WILL TACKLE THIS "C" WORD AND I CAN ALREADY SEE THE DAY THEY PRONOUNCE HIM CANCER FREE!!!
Definitions of:Fighter:1. a person who fights.2. a person with the will, courage, determination, ability, or disposition to fight, struggle, resist, etc.3. One who fights, such as a soldier or boxer.4. A pugnacious, unyielding, or determined person.
STRONG:1. Powerful, and therefore not easily broken, destroyed, attacked, defeated, resisted, or affected by weariness, illness etc.
BRAVE:1. Without fear of danger, pain etc.
HERO:1. A man or boy admired (by many people) for his brave deeds.
DETERMINATION:1. characterized by great determination; "a struggle against a determined enemy".... "C" WORD.
Thanks everybody for your love and support. I love you all so much. Please keep praying for my baby boy!!!
Thanks and God Bless.
Posted Feb 14, 2009 11:23pm
This morning Travyn got an MRI to see how the Tumor that couldn't be removed in surgery looked and to also to see if the fluid behind his incision has decreased. They said it has decrease a little but can take months to go down completly. But the Surgeons said it looked great.Today Tray has been doing OK. He got a little nauseated, so they gave him some Ativan to help with the nausea. They checked is Hemocrit Level (Red Blood Cells) and they were very low. His heart rate has been high which is a sign of a low Hemocrit Level. When the Hemocrit is low they call for a Blood Transfusion. So as im writing this, Tray is getting his transfusion. It will make him feel alot better. They also started giving him a Bolis of Lukovorin. Lukovorin pushes the Methotrxate out of his little body (Methotrexate is a Type of Chemo given yesterday)Its only suppose to stay in the infants/childrens body for 24 hours maximum. The longer it stays in his body the more damage it will do to his cells and kidneys. They will give him the Lukovorin through his NJ tube (feeding tube) every 6 hours and watch him closly to make sure it is exiting his body. They will keep checking his PH levels in his urine to montor the breaking up of the tumor so that it doesn't damage his Kidneys.
For what My little boy has gone through on a day to day basis and just starting Chemo. He is doing awesome. We attribute that to all the many prayers and blessings he has recieved from our dear friends and family.
TRAVYN IS A FIGHTER, HE IS STRONG, HE IS BRAVE, HE IS MY HERO AND MOST OF ALL MY LITTLE BOY IS DETERMINED. YOU CAN SEE IT IN HIS EYES...WHEN YOU LOOK DEEP INTO HIS BEAUTIFUL BLUE EYES, IT's LIKE THEY ARE TELLING ME "I AM GOING TO GET THROUGH THIS, AND I WILL FIGHT THIS MOM DONT YOU WORRY!!" (my dad said the same thing when he looks in his eyes)Im not trying to sound all cheesy but its true YOU CAN SEE HE IS DETERMINED TO GET BETTER AND WE ALL KNOW AND HAVE FAITH THAT HE WILL! I DONT CARE WHAT THE STATISTICS SAY OR THR PERCENTAGE RATE OF SURVIVORS OF THIS RARE CANCER BECAUSE MY LITTLE BOY ISN'T JUST ANY OTHER LITTLE BOY. HE WILL TACKLE THIS "C" WORD AND I CAN ALREADY SEE THE DAY THEY PRONOUNCE HIM CANCER FREE!!!
Definitions of:Fighter:1. a person who fights.2. a person with the will, courage, determination, ability, or disposition to fight, struggle, resist, etc.3. One who fights, such as a soldier or boxer.4. A pugnacious, unyielding, or determined person.
STRONG:1. Powerful, and therefore not easily broken, destroyed, attacked, defeated, resisted, or affected by weariness, illness etc.
BRAVE:1. Without fear of danger, pain etc.
HERO:1. A man or boy admired (by many people) for his brave deeds.
DETERMINATION:1. characterized by great determination; "a struggle against a determined enemy".... "C" WORD.
Thanks everybody for your love and support. I love you all so much. Please keep praying for my baby boy!!!
Thanks and God Bless.
Chapter 2, The Chemo Has Started.
Posted Feb 13, 2009 8:57pm
At 6:00 pm they got the go ahead to give Travyn his first dose of Chemo. After its was mix and made in the pharmacy and check three times by three different Doctors and Nurses. They do that just to REALLY make sure its the right kind. Talk about double checking!!! lol.... I was so scared when she told us she was going to bring it in at 6:00. I started to have a panic attack and I felt like I was going to pass out. I said a prayer to myself and immeadiataly felt better and calm. I looked over at this plauque my good friend Julie gave me, and it says "Let the Lord have all your worries and cares, for he is always thinking about you and watching everything that concerns you" 1 peter 5:7, I kept reading it over and over. So at 6:00 the nurse came in and gave Tray his first dose like it was just another medicine he has been taking, No big deal to her and I was sitting there freaking out. The first infusion was the Vincristine. That went really well he slept right through it. Its about 7:30 pm and she gave him the Methotrexate, that will run over a 4 hour drip. But so far he is doing so good. He is smiling and laughing at his Daddy and playing with his toys. That made me feel better and happy :). They wont give him another dose until he pee's it all out. They want to make sure this dose is completely out of his body. So around Monday or Tuesday. But you never know :/
Travyn, You are the Bravest little boy I know. You are my Hero and I cant wait until your Cancer Free!!!! Mommy loves You so much and im here right by your side until this is all over.
Thanks for all your Love and Support. Please Please Please keep praying!!! They are really needed right now. I BELIEVE IN THE POWER OF PRAYER!!
LOVE YOU ALL SO MUCH!!!!!!!
I'll keep you updated on how he is doing.
PRAY FOR TRAY!!!!!!!!!
Posted Feb 13, 2009 8:57pm
At 6:00 pm they got the go ahead to give Travyn his first dose of Chemo. After its was mix and made in the pharmacy and check three times by three different Doctors and Nurses. They do that just to REALLY make sure its the right kind. Talk about double checking!!! lol.... I was so scared when she told us she was going to bring it in at 6:00. I started to have a panic attack and I felt like I was going to pass out. I said a prayer to myself and immeadiataly felt better and calm. I looked over at this plauque my good friend Julie gave me, and it says "Let the Lord have all your worries and cares, for he is always thinking about you and watching everything that concerns you" 1 peter 5:7, I kept reading it over and over. So at 6:00 the nurse came in and gave Tray his first dose like it was just another medicine he has been taking, No big deal to her and I was sitting there freaking out. The first infusion was the Vincristine. That went really well he slept right through it. Its about 7:30 pm and she gave him the Methotrexate, that will run over a 4 hour drip. But so far he is doing so good. He is smiling and laughing at his Daddy and playing with his toys. That made me feel better and happy :). They wont give him another dose until he pee's it all out. They want to make sure this dose is completely out of his body. So around Monday or Tuesday. But you never know :/
Travyn, You are the Bravest little boy I know. You are my Hero and I cant wait until your Cancer Free!!!! Mommy loves You so much and im here right by your side until this is all over.
Thanks for all your Love and Support. Please Please Please keep praying!!! They are really needed right now. I BELIEVE IN THE POWER OF PRAYER!!
LOVE YOU ALL SO MUCH!!!!!!!
I'll keep you updated on how he is doing.
PRAY FOR TRAY!!!!!!!!!
Today Is The Day (Hopefully and Finally) 2/13/09
Posted Feb 13, 2009 12:26pm
Today is Friday 2/13/2009. Today is the day that God intended for my Little Boy to receive his Chemotherapy for his first cycle. Well at least thats what our nurse said, that can change though. Thats hospitals for ya!!! But thats ok, when they feel Confident and Ready to start they will. I am so Scared and Anxious because I dont know what to expect with how its going to affect my sweet little boy. But I have turned it over to God and its in his hands and I know everything is going to be ok. Heavenely Father has him under his wing and I truly believe that, that makes me feel alot better and relaxes my tensions. Our nurse Emily, that is administring the Chemo has been Travyn's nurse the past 4 days and she has really gotten to know him. We have gotten to know her as well and feel extremely GOOD about her giving him his first dose. She said the first Chemo is called "Vincristine". It is an infusion that will go in his Central Line that will go over a couple minutes, and the 2nd Chemo is called "Methotrexate". That infusion will go over A 4 hour drip. They will watch him and make sure he doesn't get nauseated and if he does they will give him something. They will also watch his urine output closly to make sure the chemo is exiting his body and doing its job. I'll keep you posted on his next dose, which could be tomorrow. I just keep thinking that they're is going to be a dramatic change in Travyn and he is going to get sick and he is going to lose all his hair right when they give it to him. But that is not reality. She told me you wont be able to tell a differnece for awhile. Everybody is different!!! Some lose there hair and some dont, some get sick and some dont. I just freak myself out... But Emily (Travyn's Nurse) really explains things to me and answers all my questions, and I ask the most off the wall questions, lol. which makes me feel so much better. I am very grateful for that, or I would be a Basket Case 24/7
Other then that, Travyn is doing WONDERFUL. He is smarter then when I had him at home. He knows a smile and can feel the love and strength we have as a family in his room which has healed him and is progressing the way he is. All your PRAYERS have been answered and that is also what has gotten him to where he his today and his progress. But Please keep praying for my Little Hero we are on our way to recovery and prayers are needed more and more everyday. Thank you so much for your Messages of Encouragement and Contributions to Travyn's Donation Fund. YOU HAVE KNOW IDEA HOW MUCH IT HELPS US OUT....SERIOUSLY, YOU HAVE NO IDEA!!!!
And to all that went to Chili's to eat for Travyn's Fundraiser. THANK YOU SOOO MUCH!!! God Bless You all!!! Thank you Chili's and a Special Thanks to Twila (Chili's General Manager)
KEEP PRAYING FOR MY BRAVE, STRONG, HANDSOME, FIGHTIN, POOPIN, MY HERO LITTLE BOY!!!!!!!!!!!
THANKS FOR YOUR LOVE AND SUPPORT!!!! LOVE YOU ALL...
Posted Feb 13, 2009 12:26pm
Today is Friday 2/13/2009. Today is the day that God intended for my Little Boy to receive his Chemotherapy for his first cycle. Well at least thats what our nurse said, that can change though. Thats hospitals for ya!!! But thats ok, when they feel Confident and Ready to start they will. I am so Scared and Anxious because I dont know what to expect with how its going to affect my sweet little boy. But I have turned it over to God and its in his hands and I know everything is going to be ok. Heavenely Father has him under his wing and I truly believe that, that makes me feel alot better and relaxes my tensions. Our nurse Emily, that is administring the Chemo has been Travyn's nurse the past 4 days and she has really gotten to know him. We have gotten to know her as well and feel extremely GOOD about her giving him his first dose. She said the first Chemo is called "Vincristine". It is an infusion that will go in his Central Line that will go over a couple minutes, and the 2nd Chemo is called "Methotrexate". That infusion will go over A 4 hour drip. They will watch him and make sure he doesn't get nauseated and if he does they will give him something. They will also watch his urine output closly to make sure the chemo is exiting his body and doing its job. I'll keep you posted on his next dose, which could be tomorrow. I just keep thinking that they're is going to be a dramatic change in Travyn and he is going to get sick and he is going to lose all his hair right when they give it to him. But that is not reality. She told me you wont be able to tell a differnece for awhile. Everybody is different!!! Some lose there hair and some dont, some get sick and some dont. I just freak myself out... But Emily (Travyn's Nurse) really explains things to me and answers all my questions, and I ask the most off the wall questions, lol. which makes me feel so much better. I am very grateful for that, or I would be a Basket Case 24/7
Other then that, Travyn is doing WONDERFUL. He is smarter then when I had him at home. He knows a smile and can feel the love and strength we have as a family in his room which has healed him and is progressing the way he is. All your PRAYERS have been answered and that is also what has gotten him to where he his today and his progress. But Please keep praying for my Little Hero we are on our way to recovery and prayers are needed more and more everyday. Thank you so much for your Messages of Encouragement and Contributions to Travyn's Donation Fund. YOU HAVE KNOW IDEA HOW MUCH IT HELPS US OUT....SERIOUSLY, YOU HAVE NO IDEA!!!!
And to all that went to Chili's to eat for Travyn's Fundraiser. THANK YOU SOOO MUCH!!! God Bless You all!!! Thank you Chili's and a Special Thanks to Twila (Chili's General Manager)
KEEP PRAYING FOR MY BRAVE, STRONG, HANDSOME, FIGHTIN, POOPIN, MY HERO LITTLE BOY!!!!!!!!!!!
THANKS FOR YOUR LOVE AND SUPPORT!!!! LOVE YOU ALL...
A Special Thanks To Chili's Restauant in St. George.
Posted Feb 9, 2009 8:12pm
Hey Everyone,
I just want to let everyone know that Chili's Restaurant in St. George is having a Fundraiser for my Baby Boy Travyn Shae Sinclair. It's on Tuesday Febuary 10th from 10:30 am to 11:00 pm. 10% of the sales for that day will go to Travyn's Donation Fund. You must mention Travyns name to your server for your contribution to count. Thank you ALL for your love and support.
YOU'LL NEVER KNOW HOM MUCH THIS MEANS TO ME!!!!!
Love you all,Whitney and Travyn Sinclair
THANK YOU CHILI'S!
Posted Feb 9, 2009 8:12pm
Hey Everyone,
I just want to let everyone know that Chili's Restaurant in St. George is having a Fundraiser for my Baby Boy Travyn Shae Sinclair. It's on Tuesday Febuary 10th from 10:30 am to 11:00 pm. 10% of the sales for that day will go to Travyn's Donation Fund. You must mention Travyns name to your server for your contribution to count. Thank you ALL for your love and support.
YOU'LL NEVER KNOW HOM MUCH THIS MEANS TO ME!!!!!
Love you all,Whitney and Travyn Sinclair
THANK YOU CHILI'S!
Saturday 2/7/2009
Posted Feb 7, 2009 10:00pm
First off, I just want to THANK those of you for your contributions to U.S. Bank in Travyns Donation Fund, and also to U.S. Bank for receiving them. You have NO IDEA how much it has helped us out with the expense of having a child in the hospital. I am so grateful for kind and generous people like you. THANK YOU FROM THE BOTTOM OF OUR HEARTS!!!!! May God bless you with his unconditional love. ;)
The last couple of days have been good and stable. Every morning the surgeons do there rounds to check to see how Tray is doing. So far he has been doing AWESOME!! We were worried about the swelling on my baby's head by the incision becuase the swelling has grown outward and is alot bigger. I expressed my concerns to the surgeons about the swelling and what they thought was causing the swelling to be so much greater. The surgeons said they are very "Pleased" on how he looked. They believe the swelling will start going down. Its kinda like it gets worse before it will get better and they think its at his peak. But overall they think he is doing great and looks awesome. We have been working with him on his physical therapy and he has progressed so much in moving his arms and legs better. And even when we put him on his tummy he is holding his head up so well. Somthing he hasn't been able to do for a while. He is smiling at everything he see's and I can get him to giggle so hard when I tickle him. That little boy is my hero!!!! I love you Baby Tray....Keep on doin what your doin babe, WE WILL MAKE IT!!!!
Thanks for all your love and support. And most of all your NEEDED PRAYERS!!!
Please keep praying for my Lil' Man!!!!
And to you Jayson, Please hurry back to Salt Lake. I NEED YOU HERE BY MY SIDE. And our little boy misses you and needs you too... Love you!!!
Posted Feb 7, 2009 10:00pm
First off, I just want to THANK those of you for your contributions to U.S. Bank in Travyns Donation Fund, and also to U.S. Bank for receiving them. You have NO IDEA how much it has helped us out with the expense of having a child in the hospital. I am so grateful for kind and generous people like you. THANK YOU FROM THE BOTTOM OF OUR HEARTS!!!!! May God bless you with his unconditional love. ;)
The last couple of days have been good and stable. Every morning the surgeons do there rounds to check to see how Tray is doing. So far he has been doing AWESOME!! We were worried about the swelling on my baby's head by the incision becuase the swelling has grown outward and is alot bigger. I expressed my concerns to the surgeons about the swelling and what they thought was causing the swelling to be so much greater. The surgeons said they are very "Pleased" on how he looked. They believe the swelling will start going down. Its kinda like it gets worse before it will get better and they think its at his peak. But overall they think he is doing great and looks awesome. We have been working with him on his physical therapy and he has progressed so much in moving his arms and legs better. And even when we put him on his tummy he is holding his head up so well. Somthing he hasn't been able to do for a while. He is smiling at everything he see's and I can get him to giggle so hard when I tickle him. That little boy is my hero!!!! I love you Baby Tray....Keep on doin what your doin babe, WE WILL MAKE IT!!!!
Thanks for all your love and support. And most of all your NEEDED PRAYERS!!!
Please keep praying for my Lil' Man!!!!
And to you Jayson, Please hurry back to Salt Lake. I NEED YOU HERE BY MY SIDE. And our little boy misses you and needs you too... Love you!!!
Swallow Test 2/5/2009
Posted Feb 5, 2009 6:31pm
Today at 9:00 the "Infection Specialists" came in and reported that the Infection levels have dropped more than yesterday and his incision was looking better. At 12:00 Speech Therapy came in and worked with Travyn to prepare him for his "Swallow Test". A Swallow Test is done usually after a major Brain Surgery or any serious injury involving the brain. (When a person cannot swallow properly there is a risk that food or drink may get into the windpipe and into the lungs (Called Aspiration), Which can lead to chest infections and pneumonia). When they perform the test Travyn is sitting up against an X-ray pallet. They give Travyn some formula with dye in it so they can see on the X-Ray if the formula is going down the Esophagus or the Trachea (Windpipe). The first Swallow Test Travyn did was 2 weeks ago he got a B+ which is not very good. Today Travyn got an A- which is alot better but still not ready for a bottle. They said he still has alot of swelling on the brain stem and we need to keep working with him and doing exercises. They will perform another test in 2 weeks.
Travyn is doing so good and is such a little flirt with the nurses!!!!
Thanks for all your love and support...!!
Your prayers have been answered and My precious little boy is healing up very well....
Love you all so much.
Posted Feb 5, 2009 6:31pm
Today at 9:00 the "Infection Specialists" came in and reported that the Infection levels have dropped more than yesterday and his incision was looking better. At 12:00 Speech Therapy came in and worked with Travyn to prepare him for his "Swallow Test". A Swallow Test is done usually after a major Brain Surgery or any serious injury involving the brain. (When a person cannot swallow properly there is a risk that food or drink may get into the windpipe and into the lungs (Called Aspiration), Which can lead to chest infections and pneumonia). When they perform the test Travyn is sitting up against an X-ray pallet. They give Travyn some formula with dye in it so they can see on the X-Ray if the formula is going down the Esophagus or the Trachea (Windpipe). The first Swallow Test Travyn did was 2 weeks ago he got a B+ which is not very good. Today Travyn got an A- which is alot better but still not ready for a bottle. They said he still has alot of swelling on the brain stem and we need to keep working with him and doing exercises. They will perform another test in 2 weeks.
Travyn is doing so good and is such a little flirt with the nurses!!!!
Thanks for all your love and support...!!
Your prayers have been answered and My precious little boy is healing up very well....
Love you all so much.
Wednesday 2/4/2009
Posted Feb 5, 2009 1:50am
Today has been a really good day for both T-Man and I. ;) When I woke up this morning I checked my carepage and had an extreme amount of messages from people I didn't even know, saying that they saw my story on the news and how much it inspired and touched them. Some mothers even related with me on what I've been going through emotionally and physically because there kids have gone through some similar trials. When I was getting ready to go to the hospital I got a call from fox 13 news wondering if they could come do a story on this rare cancer and of course I was all for it. When I was walking into the hospital I felt like I was in a dream again i couldn't believe what has been going on the past couple of weeks. It still is such a shock to me that my 5 month old baby has cancer and has to go through Chemo and radiation. It is truly a nightmare. But I have made a rule, when you are in Travyn's room you cannot say the "C" word (cancer) because it is not welcome anywhere and especially in my baby's body and its time for the cancer to pack up and leave his body. It is not WELCOME WHAT SO EVER. The "C word" might as well just throw in the towel and give up this fight because WE WILL WIN!!!!
So I get to the room and my dad is leaning over his crib talking to him and getting him to smile. My Dad had some great news for me about his "Staph Infection" He told me that the "Infection Specialists" came by and said it looked GREAT. They took some blood draws and tested the blood count to make sure the infection is getting better. The antibiotics are doing there job very well and is tackling the infection. So in other words: WE ARE WINNING THE BATTLE WITH THE INFECTION!!!!! YEE-HAA!!! Right when Travyn saw me, it was the cutest thing ever. He started to do his cry when he wants to be picked up. He started kicking his legs and his arms were flying all over the place. IT JUST MADE ME SO HAPPY that he stills reconizes me as his mother. You could tell he just wanted the love and comfort from his mommy!! I thrive off the validation that my son gives me. This might sound dumb but It makes me feel wanted and needed at all times and I LOVE IT!!! That little boy makes me feel so important and makes me realize that I do have a purpose in this life and a very important role as his mother, i wouldn't change it for the world.
Other then that Travyn is doing so good. I got him to giggle while the news was filming me. It was so cute. Travyn is scheduled for a "Swallow Study" again this week (hopefully) and if he passes it they will pull his feeding tube up to his tummy so when they feed him he will actually be able to feel a full belly and OH BOY does Travyn love a full warm tummy....LOLI will keep you all updated.
Thank you all so much for ALL your love and support and MOST important your needed prayers!!!!
AND TO ALL THE AMAZING PEOPLE THAT I DONT KNOW THAT LEFT ME A MESSAGE ON HERE, I JUST WANT TO THANK YOU FROM THE BOTTOM OF MY HEART. YOUR STORIES AND MESSAGES REALLY ENCOURAGE ME AND KEEP ME STRONG.....THANK YOU AND GOD BLESS.
Posted Feb 5, 2009 1:50am
Today has been a really good day for both T-Man and I. ;) When I woke up this morning I checked my carepage and had an extreme amount of messages from people I didn't even know, saying that they saw my story on the news and how much it inspired and touched them. Some mothers even related with me on what I've been going through emotionally and physically because there kids have gone through some similar trials. When I was getting ready to go to the hospital I got a call from fox 13 news wondering if they could come do a story on this rare cancer and of course I was all for it. When I was walking into the hospital I felt like I was in a dream again i couldn't believe what has been going on the past couple of weeks. It still is such a shock to me that my 5 month old baby has cancer and has to go through Chemo and radiation. It is truly a nightmare. But I have made a rule, when you are in Travyn's room you cannot say the "C" word (cancer) because it is not welcome anywhere and especially in my baby's body and its time for the cancer to pack up and leave his body. It is not WELCOME WHAT SO EVER. The "C word" might as well just throw in the towel and give up this fight because WE WILL WIN!!!!
So I get to the room and my dad is leaning over his crib talking to him and getting him to smile. My Dad had some great news for me about his "Staph Infection" He told me that the "Infection Specialists" came by and said it looked GREAT. They took some blood draws and tested the blood count to make sure the infection is getting better. The antibiotics are doing there job very well and is tackling the infection. So in other words: WE ARE WINNING THE BATTLE WITH THE INFECTION!!!!! YEE-HAA!!! Right when Travyn saw me, it was the cutest thing ever. He started to do his cry when he wants to be picked up. He started kicking his legs and his arms were flying all over the place. IT JUST MADE ME SO HAPPY that he stills reconizes me as his mother. You could tell he just wanted the love and comfort from his mommy!! I thrive off the validation that my son gives me. This might sound dumb but It makes me feel wanted and needed at all times and I LOVE IT!!! That little boy makes me feel so important and makes me realize that I do have a purpose in this life and a very important role as his mother, i wouldn't change it for the world.
Other then that Travyn is doing so good. I got him to giggle while the news was filming me. It was so cute. Travyn is scheduled for a "Swallow Study" again this week (hopefully) and if he passes it they will pull his feeding tube up to his tummy so when they feed him he will actually be able to feel a full belly and OH BOY does Travyn love a full warm tummy....LOLI will keep you all updated.
Thank you all so much for ALL your love and support and MOST important your needed prayers!!!!
AND TO ALL THE AMAZING PEOPLE THAT I DONT KNOW THAT LEFT ME A MESSAGE ON HERE, I JUST WANT TO THANK YOU FROM THE BOTTOM OF MY HEART. YOUR STORIES AND MESSAGES REALLY ENCOURAGE ME AND KEEP ME STRONG.....THANK YOU AND GOD BLESS.
Tuesday 2/3/2009
Posted Feb 3, 2009 8:07pm
This week has been very busy and very VERY stressful. Travyn's incision on the back of his head kept leaking so they had to take him back into surgery and re-open half of the incision to clean it out real good and stich it back up. The fluid that was back there was making his head really boggy and making it hard to heal properly. They got rid of the fluid when they were cleaning it and sent a sample to the lab to make sure it wasn't infected. When Travyn was done with surgery the doctor came and talked to me and said he didn't think that it was infected but sent the sample of fluid just to make sure. Well the lab results came back and it turned out to be a "Staph Infection" A Staph Infection is a staphylococcus aureus bacteria. This pesky little bacterium is very common (many people have some living on their skin all the time), but when it enters the human body, usually through an open cut or break in the skin, it can cause infection and trouble anywhere in the body. They can be very serious and life threating. The good thing is that they caught it early and had him on antibiotics before they found out. On Sunday I noticed that his Central Line on his chest looked very red and had some white looking puss on it. I grabbed a nurse immediately and showed her. They have been watching it very close to see if it was getting any worse but since he was already on antibiotics for his head they weren't to concerned. Also, on sunday he had to get a blood transfusion because his "Hematocrit" (Red Blood Cells) was very low. That is very common after having Brain Surgery and this caused his heart rate to be extremly high which was putting a strain on his heart. Last night we were moved from the Oncology floor to the Nuero Trauma Unit because he will not be starting Chemo for awhile. They want to make sure he has NO infections and everything is healed the way its suppose too. When I got to the hospital this morning the Infection Specialists came and talked to me about his Central Line and what they wanted to do with it knowing how infected it was. They said they were going to have to remove it and let it heal before they could put in another one. I was happy that they were going to remove it cause it wasn't looking to good and I was scared for my baby. Well they took him into surgery at 3:00 to remove the central Line while he was in surgery Channel 2 News called me and asked me if they could come interview me about my Baby boy with this rare cancer. The interview went great. When Travyn was done with surgery the doctor came and told me he didn't feel that it was necessary to remove the Central Line. He said the infection was on the outside of the wound and was confident that it could heal with antibiotics and time. Other then that, MY LITTLE FIGHTER has been doing SOOO good. He started smiling more and his crooked little smile is the cutest thing I have ever seen. IT JUST MELTS MY HEART!!! I LOVE THAT LITTLE GUY SO MUCH......
THANKS FOR ALL YOUR LOVE, SUPPORT AND MOST IMPORTANT YOUR WONDERFUL NEEDED PRAYERS!!!!! I CANT THANK YOU ALL ENOUGH FOR KEEPING US IN YOUR HEARTS AND PRAYERS. WE LOVE YOU SO MUCH....THANK YOU!!!!!!!!!
PRAY FOR TRAY!!!!!
Posted Feb 3, 2009 8:07pm
This week has been very busy and very VERY stressful. Travyn's incision on the back of his head kept leaking so they had to take him back into surgery and re-open half of the incision to clean it out real good and stich it back up. The fluid that was back there was making his head really boggy and making it hard to heal properly. They got rid of the fluid when they were cleaning it and sent a sample to the lab to make sure it wasn't infected. When Travyn was done with surgery the doctor came and talked to me and said he didn't think that it was infected but sent the sample of fluid just to make sure. Well the lab results came back and it turned out to be a "Staph Infection" A Staph Infection is a staphylococcus aureus bacteria. This pesky little bacterium is very common (many people have some living on their skin all the time), but when it enters the human body, usually through an open cut or break in the skin, it can cause infection and trouble anywhere in the body. They can be very serious and life threating. The good thing is that they caught it early and had him on antibiotics before they found out. On Sunday I noticed that his Central Line on his chest looked very red and had some white looking puss on it. I grabbed a nurse immediately and showed her. They have been watching it very close to see if it was getting any worse but since he was already on antibiotics for his head they weren't to concerned. Also, on sunday he had to get a blood transfusion because his "Hematocrit" (Red Blood Cells) was very low. That is very common after having Brain Surgery and this caused his heart rate to be extremly high which was putting a strain on his heart. Last night we were moved from the Oncology floor to the Nuero Trauma Unit because he will not be starting Chemo for awhile. They want to make sure he has NO infections and everything is healed the way its suppose too. When I got to the hospital this morning the Infection Specialists came and talked to me about his Central Line and what they wanted to do with it knowing how infected it was. They said they were going to have to remove it and let it heal before they could put in another one. I was happy that they were going to remove it cause it wasn't looking to good and I was scared for my baby. Well they took him into surgery at 3:00 to remove the central Line while he was in surgery Channel 2 News called me and asked me if they could come interview me about my Baby boy with this rare cancer. The interview went great. When Travyn was done with surgery the doctor came and told me he didn't feel that it was necessary to remove the Central Line. He said the infection was on the outside of the wound and was confident that it could heal with antibiotics and time. Other then that, MY LITTLE FIGHTER has been doing SOOO good. He started smiling more and his crooked little smile is the cutest thing I have ever seen. IT JUST MELTS MY HEART!!! I LOVE THAT LITTLE GUY SO MUCH......
THANKS FOR ALL YOUR LOVE, SUPPORT AND MOST IMPORTANT YOUR WONDERFUL NEEDED PRAYERS!!!!! I CANT THANK YOU ALL ENOUGH FOR KEEPING US IN YOUR HEARTS AND PRAYERS. WE LOVE YOU SO MUCH....THANK YOU!!!!!!!!!
PRAY FOR TRAY!!!!!
Story on T.V
Posted Feb 3, 2009 7:18pm
Hi Family & Friends! I just wanted to let you know that channel 2 News contacted Whitney today and wanted to do a story on baby Travyn. The reporter showed up to the hospital within an hour and interviewed Whitney!It will air tonight at 10pm!!!
Thanks again for all the love and support everyone has shown. You are all angels to our family and were so lucky to have you part of our lives.
THANK YOU!!
Posted Feb 3, 2009 7:18pm
Hi Family & Friends! I just wanted to let you know that channel 2 News contacted Whitney today and wanted to do a story on baby Travyn. The reporter showed up to the hospital within an hour and interviewed Whitney!It will air tonight at 10pm!!!
Thanks again for all the love and support everyone has shown. You are all angels to our family and were so lucky to have you part of our lives.
THANK YOU!!
Still waiting to start Chemo.
Posted Jan 29, 2009 5:17pm
Today is Thursday 1/29/09. Travyn is doing so good. We went on our first walk last night around the unit and I could tell Travyn loved every minute of it. He also pulled out his feeding tube the other night which we got a kick out of. It didn't hurt him at all. My dad said he looked over and Travyn had it wrapped around his hand like "ha ha I got it out" lol..I think he just wanted a bottle. :)
We have been patiently waiting to begin his first cycle of Chemo Therapy. It is the Neuro Surgeons decision on when we start his Chemo. They want to make sure my little boy is completely up to par. His incision on the back of his head has been leaking fluid a little and they had to put an extra stitch in and also used medical super glue to see if that would help it to quit leaking. Today they have decided that they are going to have to re-open half of his incision and clean it out and pull some extra skin together and re stitch it so it can stop leaking and heal proberly. They said Chemo will be put off for another couple days but couldn't give us an exact date.
Physical and Speach Therapy have been coming in and working with him everyday so he doesn't lose his muscle tone and his oral skills. I cant believe how amazing all these theripists, Nurses and Doctors are. They treat my little boy like he is one of there own. We are all so lucky to have a Childrens Hospital right here in Utah that is top of the line. Sometimes its easy to take life for granted until we are put into situations like this.
Please everyone....COUNT YOUR BLESSINGS AND GIVE YOUR LITTLE ONES AN EXTRA HUG TONIGHT. and when your saying your prayers PLEASE pray for my little hero!!Thank you all for your love and support. Your messages keep me strong!!!
Love you all so much.
FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH!!!!!
Posted Jan 29, 2009 5:17pm
Today is Thursday 1/29/09. Travyn is doing so good. We went on our first walk last night around the unit and I could tell Travyn loved every minute of it. He also pulled out his feeding tube the other night which we got a kick out of. It didn't hurt him at all. My dad said he looked over and Travyn had it wrapped around his hand like "ha ha I got it out" lol..I think he just wanted a bottle. :)
We have been patiently waiting to begin his first cycle of Chemo Therapy. It is the Neuro Surgeons decision on when we start his Chemo. They want to make sure my little boy is completely up to par. His incision on the back of his head has been leaking fluid a little and they had to put an extra stitch in and also used medical super glue to see if that would help it to quit leaking. Today they have decided that they are going to have to re-open half of his incision and clean it out and pull some extra skin together and re stitch it so it can stop leaking and heal proberly. They said Chemo will be put off for another couple days but couldn't give us an exact date.
Physical and Speach Therapy have been coming in and working with him everyday so he doesn't lose his muscle tone and his oral skills. I cant believe how amazing all these theripists, Nurses and Doctors are. They treat my little boy like he is one of there own. We are all so lucky to have a Childrens Hospital right here in Utah that is top of the line. Sometimes its easy to take life for granted until we are put into situations like this.
Please everyone....COUNT YOUR BLESSINGS AND GIVE YOUR LITTLE ONES AN EXTRA HUG TONIGHT. and when your saying your prayers PLEASE pray for my little hero!!Thank you all for your love and support. Your messages keep me strong!!!
Love you all so much.
FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH!!!!!
Donation Fund
Posted Jan 27, 2009 11:45pm
TO OUR WONDERFUL FAMILY & FRIENDS....If you are wondering how you can help, but aren't sure what to do, you can go to your local RED CROSS and donate blood. Your blood can help save a babies precious life. Or you can contribute a small donation to the TRAVYN SHAE DONATION FUND at US BANK. We set up a donation website at www.bephomes.com/travynWe thank you from the bottom of our hearts for all your love, support, and especially your prayers~~ God bless you all!!
Love, Ashleigh & Lindsey Sinclair ( Whitney's sisters )
Posted Jan 27, 2009 11:45pm
TO OUR WONDERFUL FAMILY & FRIENDS....If you are wondering how you can help, but aren't sure what to do, you can go to your local RED CROSS and donate blood. Your blood can help save a babies precious life. Or you can contribute a small donation to the TRAVYN SHAE DONATION FUND at US BANK. We set up a donation website at www.bephomes.com/travynWe thank you from the bottom of our hearts for all your love, support, and especially your prayers~~ God bless you all!!
Love, Ashleigh & Lindsey Sinclair ( Whitney's sisters )
Monday 1/26/2009
Posted Jan 26, 2009 11:24pm
Today has been a great day for both Travyn and I. Travyn woke up content as can be. At 3:00 pm Travyn went into surgery. They performed a Spinal Tap, Bone Marrow Biopsy and put in his Central Line. That all went really well as expected. We will have the results on wednesday. While He was sedated they Performed a "Auditory Brainstem Response Hearing Test" An ABR is used with people (especially children) when conventional testing cannot be done. This testing is usually done while the child is sedated, because the child must be completely still for the testing to work. For the ABR testing, a clicking sound is delivered to the child's ear and the brain responds and is recorded for a narrow frequency range of hearing. When compared with the extensive range of human hearing, the range of this test is somewhat narrow. However, the area that is tested is one of the most common areas for hearing loss.
Travyn's results came back and wern't so good. In his Right Ear he has moderate hearing loss. Normal conversations may sound like a whisper. The doctors said that its probable that his hearing will come back once the swelling of his brain decreases. On his Left Ear he has severe hearing loss. He will not hear any spoken conversations without the use of hearing aids. But the doctor said that since we have seen very minimal facial movement and expressions on his left side he thinks it has to do with where the tumor was and the swelling on the brain stem, and as the swelling decreases he will regain his Hearing and movement to his face.
THANKS FOR ALL YOUR LOVE AND SUPPORT EVERYONE!!! I LOVE YOU ALL SO MUCH!!! XOXOXOXOXOXOX
PLEASE KEEP PRAYING!!! TRAVYN WILL BE STARTING HIS FIRST CYCLE OF CHEMO TOMORROW.
LETS GO BABY, WE ARE GOING TO FIGHT THIS!!!
MOMMY AND DADDY LOVES YOU TRAVYN AND WE WILL BE RIGHT BY YOUR SIDE THROUGH THIS ALL. YOUR OUR FIGHTER, OUR HERO AND OUR INSPIRATION.
Posted Jan 26, 2009 11:24pm
Today has been a great day for both Travyn and I. Travyn woke up content as can be. At 3:00 pm Travyn went into surgery. They performed a Spinal Tap, Bone Marrow Biopsy and put in his Central Line. That all went really well as expected. We will have the results on wednesday. While He was sedated they Performed a "Auditory Brainstem Response Hearing Test" An ABR is used with people (especially children) when conventional testing cannot be done. This testing is usually done while the child is sedated, because the child must be completely still for the testing to work. For the ABR testing, a clicking sound is delivered to the child's ear and the brain responds and is recorded for a narrow frequency range of hearing. When compared with the extensive range of human hearing, the range of this test is somewhat narrow. However, the area that is tested is one of the most common areas for hearing loss.
Travyn's results came back and wern't so good. In his Right Ear he has moderate hearing loss. Normal conversations may sound like a whisper. The doctors said that its probable that his hearing will come back once the swelling of his brain decreases. On his Left Ear he has severe hearing loss. He will not hear any spoken conversations without the use of hearing aids. But the doctor said that since we have seen very minimal facial movement and expressions on his left side he thinks it has to do with where the tumor was and the swelling on the brain stem, and as the swelling decreases he will regain his Hearing and movement to his face.
THANKS FOR ALL YOUR LOVE AND SUPPORT EVERYONE!!! I LOVE YOU ALL SO MUCH!!! XOXOXOXOXOXOX
PLEASE KEEP PRAYING!!! TRAVYN WILL BE STARTING HIS FIRST CYCLE OF CHEMO TOMORROW.
LETS GO BABY, WE ARE GOING TO FIGHT THIS!!!
MOMMY AND DADDY LOVES YOU TRAVYN AND WE WILL BE RIGHT BY YOUR SIDE THROUGH THIS ALL. YOUR OUR FIGHTER, OUR HERO AND OUR INSPIRATION.
PREPARING FOR CHEMO
Posted Jan 25, 2009 1:53pm
Today is Sunday the 25th..... The last 48 hours has been very positive on Travyn's progress. We were moved up to the 4rth floor which is the Oncology floor and where my Son will stay for the Chemo-Therepy treatment. His room is so cute. My Sister Ashleigh bought so many fun and cute things for his room. She loves her little Nephew so much. As for my little boy, he has been sleeping really well and only gets annoyed when the Nurse's need to do there thing. Tomorrow is a big day! He will be getting his Central Line, Spinal Tap and a Bone Marrow Biopsy. The doctors will be performing this surgery while Travyn is sedated. The reasoning for the Central Line is for him to recieve all medications of the Chemo. The Spinal Tap is being done to make sure that the cancer has not spread to that area. The doctors feel that the MRI showed all was clear but have to completely make sure and this is why this has to be done. The Bone Marrow Biopsy is to collect Bone Marrow from my littel hero to make sure it has also not spread into the Bones. We are extremely confident that it will come back negative and he can start his life saving treatments!!! We had some mis-communications with the Oncologist on Thursday last week. The Chemo Therepy will be start THIS WEEK!! When the tests come back and read all clear, AND THEY WILL!!, my tough little boy will start getting the medicine he needs. The first Chemo Cylce will take approximatly 7 days to complete all the chemo medicines. Chemo is actually a combined variety of medicines that are admitted on a strict schedule throughtout the Chemo cycle.. There are some dangers that he faces during this. We must all pray very hard that his White and Red blood cells replentish suffiently after being broken down from the medicines. Infections to the intestines and other organs could be at risk if there is problems with this. White blood cells fight infection and I have complete faith that my Tray Tray will build them up just fine...As for me, I have been doing ok at times and scared out of my mind at others. Still I know I haved to bear down and be strong for not only myself but for my beautiful fighting little boy. GOOD NEWS EVERYBODY! I saw my precious baby boy SMILE at his Mama last night!! It was such a sight for me to see that he was happy for just a little moment and gave me such relief that he is getting better.
Thanks for your love and support everyone!!!! PLEASE KEEP PRAYING FOR MY LITTLE ONE!!!!! LOVE YOU ALL SO MUCH!!!!
FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Posted Jan 25, 2009 1:53pm
Today is Sunday the 25th..... The last 48 hours has been very positive on Travyn's progress. We were moved up to the 4rth floor which is the Oncology floor and where my Son will stay for the Chemo-Therepy treatment. His room is so cute. My Sister Ashleigh bought so many fun and cute things for his room. She loves her little Nephew so much. As for my little boy, he has been sleeping really well and only gets annoyed when the Nurse's need to do there thing. Tomorrow is a big day! He will be getting his Central Line, Spinal Tap and a Bone Marrow Biopsy. The doctors will be performing this surgery while Travyn is sedated. The reasoning for the Central Line is for him to recieve all medications of the Chemo. The Spinal Tap is being done to make sure that the cancer has not spread to that area. The doctors feel that the MRI showed all was clear but have to completely make sure and this is why this has to be done. The Bone Marrow Biopsy is to collect Bone Marrow from my littel hero to make sure it has also not spread into the Bones. We are extremely confident that it will come back negative and he can start his life saving treatments!!! We had some mis-communications with the Oncologist on Thursday last week. The Chemo Therepy will be start THIS WEEK!! When the tests come back and read all clear, AND THEY WILL!!, my tough little boy will start getting the medicine he needs. The first Chemo Cylce will take approximatly 7 days to complete all the chemo medicines. Chemo is actually a combined variety of medicines that are admitted on a strict schedule throughtout the Chemo cycle.. There are some dangers that he faces during this. We must all pray very hard that his White and Red blood cells replentish suffiently after being broken down from the medicines. Infections to the intestines and other organs could be at risk if there is problems with this. White blood cells fight infection and I have complete faith that my Tray Tray will build them up just fine...As for me, I have been doing ok at times and scared out of my mind at others. Still I know I haved to bear down and be strong for not only myself but for my beautiful fighting little boy. GOOD NEWS EVERYBODY! I saw my precious baby boy SMILE at his Mama last night!! It was such a sight for me to see that he was happy for just a little moment and gave me such relief that he is getting better.
Thanks for your love and support everyone!!!! PLEASE KEEP PRAYING FOR MY LITTLE ONE!!!!! LOVE YOU ALL SO MUCH!!!!
FAITH FAITH FAITH FAITH FAITH FAITH FAITH FAITH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
The Treatment Plan.
Posted Jan 22, 2009 4:56pm
Today at 9:30 am Dr. Bruggers (Oncologist) came and talked to me and my family about where we go from here knowing what kind of cancer it is and exactly what to expect with his Chemo Treatment plan. The cancer Travyn has is very rare so they have asked my permission to include Trayvn in a study for this rare cancer in the brain called AT/RT "Atypical Teratoid/Rhabdoid Tumor" AT/RT is a type of cancer that occurs in the brain, which is part of the central nervous system. It is a cancer found in an area of the back part of the brain called the Posterior Fossa. These Tumors grow quickly and can spread to other areas of the central nervous system. This means it can spread to other areas of the Brain and around spine. BUT TRAVYNS HAS NOT AND HOPEFULLY WILL NOT SPREAD! There are Three parts to treat this cancer. 1. Surgery to remove Tumor (which was already done) 2. Chemotherapy (Anti-Cancer drug treatment) 3. Radiation. Since Travyn is only 4 months they want to hold off on the radiation unless absoultly neccessary. Im all for Travyn to be a participant in this clinical study so that Primary Childrens can learn more about this RARE Cancer. If Travyn can help these doctors find a succussful cure to help other babies to fight this awful disease this is what I want and I KNOW THAT TRAVYN WOULD WANT THAT TOO!!!
On Monday Travyn will have surgery so they can Put in his "Central Line" Which will come out of the main heart artery that will have a line coming out of his chest. Thats where the Chemo will be injected into his body. While he is sedated they will also perform a Spinal Tap and collect some Bone Marrow. A Spinal Tap is a procedure performed when a doctor needs to look at the "Cerebrospinal Fluid" also known as Spinal Fluid. The reason they want to perform this procedure is to see if there is any tumor in his spine and by collecting the bone marrow they can see if it has spread anywhere else in his bones.
The Treatment Plan:The Treastment Plan involves Chemo and Stem Cell Rescue procedures. Consolidaton Chemotherapy will be performed in 3 cycles of 7 days and a MRI will be performed after to see if the Chemo is doing what its suppose to do, WHICH IT WILL FOR MY LITTLE BOY!!!! They want to start his treatment in 3 weeks so he can heal as much as possible.
I feel very overwhelmed with all this news and Im just trying to process it all. But my attitude is very Positive and Im staying strong...I HAVE HOPE!!!
Thanks for all your Prayers... PLEASE KEEP PRAYING FOR MY BABY BOY THAT HE WILL FIGHT THIS AWFUL, NASTY DISEASE AND WILL GET THROUGH THIS JUST FINE!!
I LOVE YOU ALL SO MUCH. THANKS FOR ALL YOUR MESSGAES. THEY REALLY GIVE ME ENCOURAGMENT AND KEEP ME STRONG. I COULD NOT DO THIS WITHOUT ALL OF YOU!
REMEMBER EVERYONE!!!Travyn has Cancer. BUT CANCER DOES NOT HAVE HIM!!!!!!!!!
Posted Jan 22, 2009 4:56pm
Today at 9:30 am Dr. Bruggers (Oncologist) came and talked to me and my family about where we go from here knowing what kind of cancer it is and exactly what to expect with his Chemo Treatment plan. The cancer Travyn has is very rare so they have asked my permission to include Trayvn in a study for this rare cancer in the brain called AT/RT "Atypical Teratoid/Rhabdoid Tumor" AT/RT is a type of cancer that occurs in the brain, which is part of the central nervous system. It is a cancer found in an area of the back part of the brain called the Posterior Fossa. These Tumors grow quickly and can spread to other areas of the central nervous system. This means it can spread to other areas of the Brain and around spine. BUT TRAVYNS HAS NOT AND HOPEFULLY WILL NOT SPREAD! There are Three parts to treat this cancer. 1. Surgery to remove Tumor (which was already done) 2. Chemotherapy (Anti-Cancer drug treatment) 3. Radiation. Since Travyn is only 4 months they want to hold off on the radiation unless absoultly neccessary. Im all for Travyn to be a participant in this clinical study so that Primary Childrens can learn more about this RARE Cancer. If Travyn can help these doctors find a succussful cure to help other babies to fight this awful disease this is what I want and I KNOW THAT TRAVYN WOULD WANT THAT TOO!!!
On Monday Travyn will have surgery so they can Put in his "Central Line" Which will come out of the main heart artery that will have a line coming out of his chest. Thats where the Chemo will be injected into his body. While he is sedated they will also perform a Spinal Tap and collect some Bone Marrow. A Spinal Tap is a procedure performed when a doctor needs to look at the "Cerebrospinal Fluid" also known as Spinal Fluid. The reason they want to perform this procedure is to see if there is any tumor in his spine and by collecting the bone marrow they can see if it has spread anywhere else in his bones.
The Treatment Plan:The Treastment Plan involves Chemo and Stem Cell Rescue procedures. Consolidaton Chemotherapy will be performed in 3 cycles of 7 days and a MRI will be performed after to see if the Chemo is doing what its suppose to do, WHICH IT WILL FOR MY LITTLE BOY!!!! They want to start his treatment in 3 weeks so he can heal as much as possible.
I feel very overwhelmed with all this news and Im just trying to process it all. But my attitude is very Positive and Im staying strong...I HAVE HOPE!!!
Thanks for all your Prayers... PLEASE KEEP PRAYING FOR MY BABY BOY THAT HE WILL FIGHT THIS AWFUL, NASTY DISEASE AND WILL GET THROUGH THIS JUST FINE!!
I LOVE YOU ALL SO MUCH. THANKS FOR ALL YOUR MESSGAES. THEY REALLY GIVE ME ENCOURAGMENT AND KEEP ME STRONG. I COULD NOT DO THIS WITHOUT ALL OF YOU!
REMEMBER EVERYONE!!!Travyn has Cancer. BUT CANCER DOES NOT HAVE HIM!!!!!!!!!
The Battle Begins.
Posted Jan 21, 2009 4:54pm
Today has been alot better day then yesterday. I got alot of rest thanks to the Ronald Mcdonald House. I came to the hospital with a positive attitude knowing today would be a great day no matter what we encountered with Travyns Pathology results. Dr. Kestle (Nuero Surgeon who performed Travyn's Brain surgery) came to our room and had the results. The type of cancer that my little boy has is called RHABDOID. This is a rare cancer found in infant brain tumors that has the possibility of growing back. This cancer type was found 15 years ago, which is not very long but there has been extensive recent research which has been very positive. The good news is that this cancer is TREATABLE with Chemo Thearapy and Prayers!!! Radiation can not be used as a treatment due to Travyn being only 4 months old. We are grateful that modern medicine will cure my precious little boy. We have a long road ahead of us and we are ready to battle this awful disease. We will find out exactly what kind a treatment plan Travyn will need and when he will begin after the Oncologist comes and talks to us. As for now he doing awesome and is healing everyday. He is off the oxygen and his sodium levels are stable. He has been moving his arms and legs like crazy and almost rolled on his side. They're thinking he is about ready for his Drainage tube, in his Ventricle, (in the middle of brain that drains excess spinal fluid) to be removed either tonight or tomorrow.
I will update after we speak to the oncologist.
Thank you from the bottom of our heart for all your prayers. I cant thank you enough. We need them more then ever.
MY SON WILL WIN THIS BATTLE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Posted Jan 21, 2009 4:54pm
Today has been alot better day then yesterday. I got alot of rest thanks to the Ronald Mcdonald House. I came to the hospital with a positive attitude knowing today would be a great day no matter what we encountered with Travyns Pathology results. Dr. Kestle (Nuero Surgeon who performed Travyn's Brain surgery) came to our room and had the results. The type of cancer that my little boy has is called RHABDOID. This is a rare cancer found in infant brain tumors that has the possibility of growing back. This cancer type was found 15 years ago, which is not very long but there has been extensive recent research which has been very positive. The good news is that this cancer is TREATABLE with Chemo Thearapy and Prayers!!! Radiation can not be used as a treatment due to Travyn being only 4 months old. We are grateful that modern medicine will cure my precious little boy. We have a long road ahead of us and we are ready to battle this awful disease. We will find out exactly what kind a treatment plan Travyn will need and when he will begin after the Oncologist comes and talks to us. As for now he doing awesome and is healing everyday. He is off the oxygen and his sodium levels are stable. He has been moving his arms and legs like crazy and almost rolled on his side. They're thinking he is about ready for his Drainage tube, in his Ventricle, (in the middle of brain that drains excess spinal fluid) to be removed either tonight or tomorrow.
I will update after we speak to the oncologist.
Thank you from the bottom of our heart for all your prayers. I cant thank you enough. We need them more then ever.
MY SON WILL WIN THIS BATTLE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
No Word Yet!
Posted Jan 20, 2009 5:42pm
I just wanted to do a quick update that we haven't recieved the patholgy results because of the hoilday on monday. They said it may be tomorrow before we get the results. They're watching his sodium because its so low and if it gets to low there's a concern he can have seizures. Low sodium is common after brain surgery. If it gets any lower they will put him back in PICU- Pediatric Intensive Care Unit. So PLEASE keep on praying its been a tough and emotional day.
Love you guys so much and thank you for your love and support and most important your prayers.
Posted Jan 20, 2009 5:42pm
I just wanted to do a quick update that we haven't recieved the patholgy results because of the hoilday on monday. They said it may be tomorrow before we get the results. They're watching his sodium because its so low and if it gets to low there's a concern he can have seizures. Low sodium is common after brain surgery. If it gets any lower they will put him back in PICU- Pediatric Intensive Care Unit. So PLEASE keep on praying its been a tough and emotional day.
Love you guys so much and thank you for your love and support and most important your prayers.
Today is the day!!!
Posted Jan 20, 2009 10:05am
I woke up this morning feeling anxious and a little down. I didn't sleep much last night. I kept thinking about today and when I see that doctor walk in my room. I know he is going to tell me the news that is going to change my life forever. I been praying all morning and asking hevenely father to help get me through this day with courage and strength. I have to stay strong for my precious little boy. He means so much to me and I will do anything and everything to help get him through this. He is my rock as I am his. Its been a rollar coaster of emotions like you would not believe. As my mom always tells me "This to shall pass" and that it will. My family has been so wonderful and supportive. This life changing experience has pulled my family so close and our bond is unbreakble. My boyfriend Jayson and his family are so loving and comforting. Its like we are one big family now. I am so greateful for them. I dont know what I would do without my wonderful family. Their being strong for me while im being strong for my gorgeous baby boy. I thought it was so funny last night after my family left. This nurse from other end of the hall came into my room and asked me "Is this your parents first grand baby??" and I said "No, why?" and she said "cause I have never seen so much love and support in one our rooms before" She kinda choked up alittle when she was saying that. :) MY FAMILY ROCKS!!!
Last night was so amazing. I got to hold my beautiful son for the first time in 5 days. I can't even tell you how good it felt. He was looking at me like he was in heaven. He would not take his little eyes off of me. It was so emotional. I honestly could feel his pain but I believe that its so healing for a baby to be held by his mother when their sick. Its like I was giving him MY healing strength just by holding and loving him. I believe since my baby boy is sick with cancer he's closer to hevenely father then ever. When I was holding him its like hevenely father was holding me and giving me his strength to be strong for Travyn. it was so special and spiritual. I LOVED EVERY MINUTE!!!!
Keep Praying for Travyn. Thank you all for your love and support. You have all helped me get through this with your messages. I love them all thank you.
Posted Jan 20, 2009 10:05am
I woke up this morning feeling anxious and a little down. I didn't sleep much last night. I kept thinking about today and when I see that doctor walk in my room. I know he is going to tell me the news that is going to change my life forever. I been praying all morning and asking hevenely father to help get me through this day with courage and strength. I have to stay strong for my precious little boy. He means so much to me and I will do anything and everything to help get him through this. He is my rock as I am his. Its been a rollar coaster of emotions like you would not believe. As my mom always tells me "This to shall pass" and that it will. My family has been so wonderful and supportive. This life changing experience has pulled my family so close and our bond is unbreakble. My boyfriend Jayson and his family are so loving and comforting. Its like we are one big family now. I am so greateful for them. I dont know what I would do without my wonderful family. Their being strong for me while im being strong for my gorgeous baby boy. I thought it was so funny last night after my family left. This nurse from other end of the hall came into my room and asked me "Is this your parents first grand baby??" and I said "No, why?" and she said "cause I have never seen so much love and support in one our rooms before" She kinda choked up alittle when she was saying that. :) MY FAMILY ROCKS!!!
Last night was so amazing. I got to hold my beautiful son for the first time in 5 days. I can't even tell you how good it felt. He was looking at me like he was in heaven. He would not take his little eyes off of me. It was so emotional. I honestly could feel his pain but I believe that its so healing for a baby to be held by his mother when their sick. Its like I was giving him MY healing strength just by holding and loving him. I believe since my baby boy is sick with cancer he's closer to hevenely father then ever. When I was holding him its like hevenely father was holding me and giving me his strength to be strong for Travyn. it was so special and spiritual. I LOVED EVERY MINUTE!!!!
Keep Praying for Travyn. Thank you all for your love and support. You have all helped me get through this with your messages. I love them all thank you.
One step forward...
Posted Jan 19, 2009 9:25pm
I'm exhausted, but wanted to do a quick update on how Travyn's doing. Today's been long and tiring, but very encouraging. Travyn's swelling has gone down tremendously and he looks like my sweet little boy. He has had his eyes open for long periods at a time. Its so hard because he looks at me and wants so badly for me to hold him. They haven't received a medical clearance from the doctor that its okay for me to hold him yet, so I'm patiently waiting. Travyn got his PICC line removed today which is really good! (A PICC line is an I.V that starts from his groin and they string it up through his vein to the top of his heart which then monotors his blood pressure) The best part of the day was when he was moved out of Pediatric Intensive Care Unit up to the Nuero Trauma Unit which is AWESOME!!My little fighter is one step further along.
Tomorrow is a big day everyone..... we find out what kind of cancer it is and how were going to tackle this horrible disease. Rememeber Travyn has cancer, BUT CANCER DOES NOT HAVE HIM!!!
We need your prayers tonight more than ever. Thank you for your love and support. Travyn and I love you all so much. May god bless you all.
Posted Jan 19, 2009 9:25pm
I'm exhausted, but wanted to do a quick update on how Travyn's doing. Today's been long and tiring, but very encouraging. Travyn's swelling has gone down tremendously and he looks like my sweet little boy. He has had his eyes open for long periods at a time. Its so hard because he looks at me and wants so badly for me to hold him. They haven't received a medical clearance from the doctor that its okay for me to hold him yet, so I'm patiently waiting. Travyn got his PICC line removed today which is really good! (A PICC line is an I.V that starts from his groin and they string it up through his vein to the top of his heart which then monotors his blood pressure) The best part of the day was when he was moved out of Pediatric Intensive Care Unit up to the Nuero Trauma Unit which is AWESOME!!My little fighter is one step further along.
Tomorrow is a big day everyone..... we find out what kind of cancer it is and how were going to tackle this horrible disease. Rememeber Travyn has cancer, BUT CANCER DOES NOT HAVE HIM!!!
We need your prayers tonight more than ever. Thank you for your love and support. Travyn and I love you all so much. May god bless you all.
The Power Of Prayer
Posted Jan 18, 2009 8:20pm
So we were waiting on the nurse to perform another "Spontaneous Breathing Test" to see how he would do with out the ventalator. Travyn started to sound really congested in his chest and lungs. When you would put your hand on his chest it would rumble and vibrate really Bad. He couldn't cough to loosen all the "gunk" so they had to stick a tube that went through his breathing tube through his nose and down his throat to suck all the gunk that was in his lungs. They did that about 5-8 times over and over. I cant even begin to tell you how sad and painful it was for my little boy. He would start to cry but since he had the breathing tube in his throat going through his vocal cords no sound would come out just the movement of him crying and the facial expressions. He even had TEARS. I couldn't handle it. I started to cry so hard and about collapsed I could not see my baby go through with this horrible procedure. But like I keep saying he is my little TOUGH GUY and so he made it through it just fine. After all that I was so worked up and trying to calm myself down I asked my dad and Jayson's stepfather Mike if they would give Travyn another blessing before the Breathing Test so that it would go smoothly and hopefully go well enough so they could take out the breathing tube. So my dad and Mike gave my precious baby a beautiful blessing. It was such a nice blessing too. After that the 2nd Spontaneous Breathing Test was performed and didn't go as I expected. Travyn didn't last very long with out the ventalator so they turned it back on and told me that it didn't look good. They said it WASN'T the narcotics that were making him to not breath because he has been off of them all day for this reason. The nurses told me that the swelling was so bad around his brain stem that it was causing Respitory depression and weren't sure if it was temporary or permanent. So I got all scared and went and explained it to my mom. She wanted to ask the nurse some questions so we walked back into the PICU and the doctor was there. The nurse said "forget what I said and let the doctor explain what he wants to do". I felt happy that it was different news. :) The doctor said he felt good about his breathing and his lungs looked really good. He said that they would never know how he would do without the breathing tube unless they tried without it. He said that he was pretty sure it was the breathing tube that was casuing so much swelling and making it hard to breath. He was confident enough to take it out and see how he would do. but with a backup breathing tube incase it didn't go well. So my nurse told me to go wait in the waiting room for 15 min while they extubate the breathing tube. She said it would be way to hard for me to watch incase they had to put another one back in. So about 20 min later I get a phone call from my nurse and said that the breathing tube was out and to come and see my baby boy. :) I walked in the room and there was my little boy with no breathing tube. He was breathing just fine ON HIS OWN!!! They had to do a couple breathing procedures to help get rid of the inflamation and mucus. They said I would get to hold him after the doctor check him out and everything was ok.
I am so grateful for the power of prayer!! I feel like if it wasn't for mike and my dad and the many prayers that are being said in behalf of my baby boy he would not be progressing like the way he is..
Thank you all so so so much for your love and support.. I love you all very much.
Posted Jan 18, 2009 8:20pm
So we were waiting on the nurse to perform another "Spontaneous Breathing Test" to see how he would do with out the ventalator. Travyn started to sound really congested in his chest and lungs. When you would put your hand on his chest it would rumble and vibrate really Bad. He couldn't cough to loosen all the "gunk" so they had to stick a tube that went through his breathing tube through his nose and down his throat to suck all the gunk that was in his lungs. They did that about 5-8 times over and over. I cant even begin to tell you how sad and painful it was for my little boy. He would start to cry but since he had the breathing tube in his throat going through his vocal cords no sound would come out just the movement of him crying and the facial expressions. He even had TEARS. I couldn't handle it. I started to cry so hard and about collapsed I could not see my baby go through with this horrible procedure. But like I keep saying he is my little TOUGH GUY and so he made it through it just fine. After all that I was so worked up and trying to calm myself down I asked my dad and Jayson's stepfather Mike if they would give Travyn another blessing before the Breathing Test so that it would go smoothly and hopefully go well enough so they could take out the breathing tube. So my dad and Mike gave my precious baby a beautiful blessing. It was such a nice blessing too. After that the 2nd Spontaneous Breathing Test was performed and didn't go as I expected. Travyn didn't last very long with out the ventalator so they turned it back on and told me that it didn't look good. They said it WASN'T the narcotics that were making him to not breath because he has been off of them all day for this reason. The nurses told me that the swelling was so bad around his brain stem that it was causing Respitory depression and weren't sure if it was temporary or permanent. So I got all scared and went and explained it to my mom. She wanted to ask the nurse some questions so we walked back into the PICU and the doctor was there. The nurse said "forget what I said and let the doctor explain what he wants to do". I felt happy that it was different news. :) The doctor said he felt good about his breathing and his lungs looked really good. He said that they would never know how he would do without the breathing tube unless they tried without it. He said that he was pretty sure it was the breathing tube that was casuing so much swelling and making it hard to breath. He was confident enough to take it out and see how he would do. but with a backup breathing tube incase it didn't go well. So my nurse told me to go wait in the waiting room for 15 min while they extubate the breathing tube. She said it would be way to hard for me to watch incase they had to put another one back in. So about 20 min later I get a phone call from my nurse and said that the breathing tube was out and to come and see my baby boy. :) I walked in the room and there was my little boy with no breathing tube. He was breathing just fine ON HIS OWN!!! They had to do a couple breathing procedures to help get rid of the inflamation and mucus. They said I would get to hold him after the doctor check him out and everything was ok.
I am so grateful for the power of prayer!! I feel like if it wasn't for mike and my dad and the many prayers that are being said in behalf of my baby boy he would not be progressing like the way he is..
Thank you all so so so much for your love and support.. I love you all very much.
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