Thursday, May 21, 2009

3rd week of Radiation.
Posted 2 hours ago
I cant believe we are already on our 3rd week of Radiation. WOW! time is flying by. Travyn is doing so good and he is getting SOOO big! The doctors ask us every morning if we have seen any side effects and we honestly havent seen any change in Travyn. The only thing I have noticed is the back of his neck where they are radiating is that its more red then usual, but they said thats normal. But thats about it!! He is such a good boy. Always so happy. Loves his toys and just loves to tease daddy. I think he is a Daddy's boy. :( but thats ok I know he still loves me like crazy. :) But things are going good here. We went and got our pictures taken and that was a blast. We go on walks almost every night and we are just loving life more then ever. Life is good!! especially with our gorgeous son in our lives. Jayson took Travyn to Radiation the other day and let me sleep in. After radiation Travyn had to go get labs drawn at Primary Childrens and Dr. Bruggers (travyn's main oncologist) came in to check on Travyn to see how he was doin and she said to Jayson, "I am so impressed with how well you and Whitney are doing and how well your doing taking care of this little boy. He looks PHENOMENAL"!!!!! May I shake your hand?" :)When he came home and told me this I started crying cause that meant so much to hear. Especially coming from her. :)Anyways, Things are going very well. Travyn is so smart and I cant tell any learning disabilities. He is smarter then you would think after going through all he has gone through. He is our little HERO and we love him so much. God is taking care of us and he always will. We could NOT do this without God's help. He has us wrapped in his arms and he isnt letting us go nowhere. God is good!And to all of you that have prayed for my sweet boy, I hope you know how much it means to us. How could I ever thank you all?Please continue to pray for my beautiful baby boy.
If you have some extra time one day you should look at the pictures from when he first got sick and had surgery till today and how well he is doing. And how many miracles we have seen and all the prayers that have been answered. It just reminds you how amazing God is and how lucky we are to be children of the most almighty God ever. Just take a deep breath, because you'll never live this moment again.
May God bless you for praying for my family.
Love you all so much!!!

Friday, May 15, 2009

2nd week of Radiation.
Posted 19 hours ago
I cant even begin to tell you how good Travyn is doing. He is always so happy and such a busy body. Jayson and I are lovin life and having our own little family. Its what I have always wanted and I cant wait until Tray is all better and we can think about having more kids. Travyn will be the best big brother!!! :) We have one more day of Radiation for this week and then we have Saturday and Sunday off and WE CAN SLEEP IN!!! YAY!but, so far Radiation has gone great! We get up at 5:00 every morning and I give Travyn his Prevacid and Euthomycin. (Prevacid is like baby tums and Euthomycin is an antibiotic.) then we get ready, eat breakfast and leave the house by 6:50. We get to Huntsmans and walk to our room they have assigned us. Thats where we meet the anesthesiologists. They walk us back to the Radiation room where we drop off Tray. We put him down on the radiation table and then they tell us they'll call us when there down. The first day of Radiation they sedated Tray while we were in the room and they didnt even worn us. I was looking around at all the equipment and I looked back at Tray and he was out his eyes were open and my heart dropped. It was so scary! I was kinda upset they didnt worn us. I didnt want to see that. :( anyway so once we leave we go upstairs and go eat breakfast at "The Point" restaurant and by the time we sit down they are already calling us saying Trays all done with Radiation. So we head downstairs. We have to sit with Tray for 30 min while they monitor him and then we leave. On Mondays and Thursdays we have Labs at Primary Childrens. So those days we get done with Radiation and head to Primarys right after. He get blood drawn to see how hia protein is and everything else. Then we go home and I hook him back up to his feeding pump and his T.P.N and Lipids. T.P.N is Total parenteral nutrition, it is the practice of feeding a person intravenously, bypassing the usual process of eating and digestion. The person receives nutritional formulas containing salts, glucose, amino acids, lipids and added vitamins. Its extra calories. They call it dinner in a bag. He recives those because he is not meeting his feeding goal with formula, which is 43 mls and hour and he is only getting 25 mls an hour and they want to make sure he is getting the nutrition he needs. After I do all that we go on with our daily lives. We are free to do whatever we want. We go on walks down to Temple Square, We go see family and friends (that arent SICK!) and then we come home eat dinner, give Tray a bath and get him ready for bed and at Midnight we turn off his feeds cause he cant have anything by mouth for 8 hours before he gets sedated. Then we do it all over agian the next day. We absolutly have no complaints though. Its all so worth it and its nothing like being in the hospital. We are so grateful for everyday with our precious baby boy. We are truly blessed how well he is doing and how much of a difference it has been since he has been out of the hospital. He has learned so much lately and the oncologists are all so impressed with his progress. I know, if it wasnt for our Heavenly Father he would not be where he is at today. I thank him everyday. And to all of you that have prayed for my sweet son. THANK YOU SO MUCH! You will never know how much it means to me and my family. I wish there was somthing I could do to show you my gratitude. I love you all so much!
Thanks for the love and support!!

Friday, May 8, 2009

The Last 2 Weeks.
Posted 11 hours ago
Hey Friends and Family, I just want to start this off by apologizing for not writing an update on how Travyn has been doing. I have been so incredibly busy being a Mommy and Nurse. I dont know if im coming or going and I cant remember the last time I ate a hot meal. lol But, it has been so worth it and im not going to complain.Anyways, about my lil Fighter Travyn, He is doing amazing!! He is the cutest thing I have ever seen and he makes us laugh so hard. Everyday he has a "new" thing he does with his mouth, voice, right now, his new thing is to talk with his fingers in his mouth. lol its so darn cute!!!My last update I left off where we were at the hospital and Tray was getting a new Central Line and he was going into surgery the next day. Well, that went really well. Thanks to all the prayers!! We weren't in the Hospital very long after he was out of surgery. He was doing that good! I got permission from Tray's Doctor if we could travel down to St. George and Cedar City for saturday and sunday. She said she had NO problem with that and to just keep an extra eye on him and his tempeture. We drove down to St. George on Saturday and it felt so goooooood to get out and to be freeeeee!! I was loving every minute of the 5 hour drive, especially when you have been in a hospital for 3 consistent months. WOW, It felt amazing to get out. We stayed at my house in my own bed :) i have missed my house so much down there. Tray slept in his brand new crib he got for x-mas and I could tell he really enjoyed it as well. It was so good to see my Brother, Christian and my Good friend, Sydney. I have missed them so much. Especially my brother. He is the funniest guy I have ever met and he can always put a smile on my face no matter what. ;) On our way back we stopped in Cedar to visit with Jayson's family. His Dad was called to be the 1st counsler in the Bishop Rick, so we went to there ward to support him. Nobody deserves it more then him :) We were very happy for him. We got home late sunday night and was in such a panic about the following day, Monday. That was his 1st day starting radiation. so we were trying to get organized the best we could so we could get up and be up at the Huntsman Cancer Institute at 7:15 am. First day went good and now he is on day 5 which is friday 5-8-09. We have Saturday and Sunday off but Monday we start all over again, starting at 7:15 am Mon-FriHe has 28 sessions. It will go by fast though. Im not worried. We havent seen any side effects quite yet but there suppose to be not that bad. Nothing like chemo!!!! He can get really tired but thats about it.Last night Me, Jayson and Travyn went to Temple Square and walked around for 2 hours it was so nice. We took him into thr visitors center where they have the big statue of Jesus and Travyn loved it. The spirit in the room was so strong and it was just peaceful as ever. We took a ton of pictures so I will have to post some. They are priceless!!!Other then that, everything has been going just as expected if not better. Jayson moved back to Salt Lake so he could help me with Tray. Which I am very happy he is back, We missed him!! Travyn has been holding his feeds down and hasn't been throwing up whenever you move him. He is so wild and he is catching up pretty fast with meeting all the milestones. He is always so happy and he always has a smile on his face. We are loving every minute with him at home and you can tell he knows he is OUT of that darn hospital. Well everyone, Im going to head to bed. I am so grateful I didnt lose his update like last time. :(
Please pray for my baby that his radiation sessions go good and that the radiation does its job and eats away the tumor. I have FAITH it will!!!
Thanks for your love and support!!! Love you all so much!!!

Friday, May 1, 2009

Posted 12 hours ago
I just wrote THE LONGEST UPDATE about my whole week with Tray and somehow I lost it. I am so frustrated right now! I have been up since 12:00 am writing this wonderful update and Its GONEZO!!!! So I am going to bed and I will re-write my update tomorrow. UGH, I hate computers somtimes. Well, Everyone I will just write a quick update on Travyn. Its been 1 week today since he has been home with me at the Ronald McDoanld House and he has been doing awesome but tonight we are back in the hospital because his Central Line broke (My Fault) It got caught on his carseat and snapped. Anyways, they have fixed it twice but it continued to leak so now they have to put a whole new Central Line in tomorrow morning. WHich means he will be sedated and in the O.R. for a couple of hours. So please pray for my baby that it all goes well in surgery, and I will update you on how our week has gone so far tomorrow! It is 3:30 in the morning and I have to get some sleep.... Ugh, Did I already tell you I DISLIKE computers somtimes??? I cant believe I lost my LOOOONG update ... Oh well, Im over it.. :) Love you all so much and thank you for your love and support!!! Night NIght!!!!!!!!!!!!
May God bless you all!!!!!!!!!!!! Hugs and Kisses