Thursday, April 23, 2009

I HaVe SoMe GoOd NeWs!!!
Posted 26 minutes ago
Good Morning Everybody, Well I have some VERY GOOD NEWS for all of you!!!!!!!!!!TRAVYN'S MRI FINAL RESULTS SHOWED "NO CANCER CONCERNS" WITH HIS SPINE! THE RESIDUAL TUMOR ON HIS BRAIN STEM IS THE SAME SIZE IF NOT SMALLER!!!!! They told us when a Baby/Kid grows the tumor will grow with them, and Tray's tumor is has shown NO GROWTH what so ever!!!!!!
Now for some more GOOD NEWS!!!!!!!
Our Little Miracle Boy.
Posted 10 hours ago
Sorry I haven't written for a while. It's just been one of those tough weeks. We got the results back on his blood culture and sure enough he had a blood infection. Its called "Enterococcus" It's a bacteria that everbody has in there intestines. But with Travyn the bacteria got in his blood stream and caused an infection. I have no idea how it got in his blood but it did!! :/ and since his blood count was zero, he had NO WHITE BLOOD CELLS to fight this infection. My Dad somehow, someway got a General Authority to come up to the hospital and give Travyn a blessing. I cannot remember his name for the life of me. But, it was such a beautiful blessing and the spirit was so strong. He was such a nice guy and we chatted for a bit then he left. It was the weirdest thing, but right when he left, Travyn started to shiver so bad and he curled into a ball. He was shivering so hard I thought he was having a seziure or somthing. His hands and feet turned purple which is a sign of infection. I called my nurse in and she took his temp and it was back to 104 and his heartrate was high. They took some more blood cultures to send to the lab to test for infection. They say if there is any kind of infection it can take up to 24 hours to grow. The resident at that moment came in and was explaining that they were pretty sure it was an infection but didnt know exactly what kind. She said it could be a sinus infection or a viral infection. As she was explaining to me what it could be her pager went off and she looked up at me and said "OK, Travyn's blood culture came back positive for infection" She also said that they didnt know what kind it was yet but THERE was an infection in his blood. I started crying and was so scared. She was so sweet and she comforted me. She then hurried out ther door yelling at the nurses "OK, everybody the cultures were positive. Lets get moving! "Janet order some Venco now" Venco is an antibiotic that is very strong and aggressive.It was amazing how fast the blood cultures grew and how we got the results back so quick right after Travyn's blessing from the General Authority!! Just one more miracle to add to our many!!! God works in mysterious ways!!!!The following day his fever was down and the infection was undercontrol. The weekend was relaxing and healing. Travyn has been having a hard time keeping down his feeds. He is only getting 15 mil an hour. They are continuous feeds and going at all times. It is very frustrating because the doctors seem to not have any answers on why he cant keep them down and throwing up even if they turn them off for a couple of hours. They have done a tummy X-ray and that looked fine and normal. so we are just trying to rule out whats going on with his little tummy.Other then that, Travyn has been doing great they have decided to give Tray's Liver a break from Chemo because of the Liver disease he got a couple weeks ago. And they are going to start Radiation. They usually wait until they have completed all 5 cycles but they feel like it is nessescary to go ahead and start. I have mixed concerns regarding them starting radiation due to his age. They dont like to perform radiation at too long of age because of brain development. but they feel like they dont have a choice because of the aggressivness of the AT/RT Tumor. But I know once agian I have to turn my sweet baby boy over to the hands of God. And I know he is in GOOD HANDS!!!! God can move mountians and God WILL HEAL MY BABY BOY!!
They ordered an MRI yesterday but we haven't recieved the results yet!! Hopefully tomorrow morning.Today, my Dad and I took Travyn on a walk outside. We took him to a little garden they have at the hospital called the "Angel Garden" It has a stream and flowers and beautiful statues. Travyn was LOVING IT!! I could just tell he knew we were outside getting some FRESH air. The birds were chirping and it was so sunny! He was cooing and saying "Mum Ma" "Mum Mum Mum Ma" the whole time. It brought tears to my eyes to see him so happy and having fun. I know it did him alot of good because he didnt throw up once while we were out there and when we got back to his room he was so worn out he passed out in my arms. He is doing great and im so proud of him!! he is my lil FIGHTER!!! I KNOW DEEP DOWN IN MY HEART THAT I COULD NOT GET THROUGH THIS WITHOUT GOD!! I HAVE PUT MY STRENGTH INTO THE LORD AND HE HAS PUT HIS STRENGTH INTO ME!!!And word has it that we MIGHT be going home tomorrow!!! but we'll see!!!! :-) ;-) :-) :-) :-)And to those of you that have financely donated to Travyn's Donation Fund, I just want to THANK YOU from the bottom of my heart. YOU HAVE NO IDEA HOW MUCH IT HAS HELPED!!!! THANK YOU!!!!
Thank you for all your love and support!!! and your healing prayers!! Please keep praying for my sweet son!! I love him so much!!!! MIRACLES DOOOOO HAPPEN!!!!
May God bless you all for praying for our family!!!!!
Love you so much!!!

Friday, April 17, 2009

I first heard about this yesterday around 12:30pm when Whitney sent me a text message. As soon as I got her message I stopped what I was doing at work and said a little prayer for Travyn. His fever and his heart rate were high and then he recieved his blessing. Not long after that both his fever and heart rate went back down a little. Unfortunetly I got another message last night around 10:00pm saying that his fever had gone back up to 104 and that his heart rate was 190-200. They got his blood cultures back and they were positive for infection. The blood infection he has is called Enterococcus. The doctors say it is a very common blood infection and that they are are very confident they have it under control with antibiotics. I will update you as soon as I hear more. Thanks for taking the time to read Travyn's blog and supprot him and his family.

Amanda Jennings
What a week!!!
Posted 20 hours ago
Well everyone, We are still here at the hospital!!! On Tuesday Travyn was throwing up alot but wasn't running a fever or anything, he was just having a hard time holding down his feeds. So they decided to keep him one more night so they could keep an eye on him. Well that one night turned into 2 nights. This morning I got a phone call from Tray's nurse saying he wasn't having a very good morning and that he was running a fever of a 104. She said they took some blood cultures to check for infection. When I got off the phone I drove up to the hospital in a panic. When I walked in Travyn's room I just started to ball. He was asleep in his diaper and looked so pale and sick. It was so sad to see him like this. I noticed that he nad no feeding tube, so I asked his nurse why he didnt have one. She said "well he pulled it out so we put in another one and he pulled that one out too!!!" (little stinker)I honestly was happy he didnt have one in because I cant even imagine how uncomfortable that would be. And to all the mothers out there, you know when your kid is sick you want them to be as comfortable as possible and you spoil them. I let him have 2 binkeys. One in his mouth and one in his hand. WOW!! What a softy I am!!! I called my mom and told her what was going on and she immediately called my whole family to let them know and to say a prayer. Well I started putting thick baby lotion on him and i put a cold washcloth on his head to cool him off. He was like an oven he was so warm. I had my nurse call the elders that work in the hospital and they came and gave Tray a Beautiful blessing. They asked me if I wanted one and I said "Yes please" because I was a wreck. Im not even kidding you by the time they walked out the door Trays heartrate was dropping back to normal and I took his temp and it had dropped a degree. WOW, The power of prayer is amazing. Well I am just sitting here while Tray is sleeping and just thanking God for another miracle. But, now we just need to keep praying that nothing grows on the blood culture.
Thanks so much for all your prayers!!!your Love and Support is amazing and I love you all.
Please keep praying for my sweet boy!!!

Monday, April 13, 2009

WE ARE GOING HOME!!!!Posted 55 minutes ago
Guess what everyone??? WE GET TO GO HOME TOMORROW!!!!!!! Oh my gosh, I am so excited. I swear, I never thought this day would ever come. Only though its for one week, I am so grateful that I get this oppurtunity. My house is ready for my sweet little boy to come home. I have washed his carseat cover and have disinfected my car, house, you name it. My Dad is on his way up so that he can take advanatage of being with Tray AT HOME!!! Jayson is coming up on Thursday so he can be with him as well. This is going to be such a great time. I am really looking forward to having him home. I cant wait to snuggle in my bed with him and fall asleep together. I cant wait to get up with him in the middle of the night and rock him back to sleep. I never thought I would ever be so excited to wake up in the middle of the night but I am. lol WOW!! When I got the news last night that we were going home, I have to admit I was a little scared. Its been 3 months that he has had a nurse watch every move and He has been on monitors ever since his surgery. Its just scary cause now he wont have a monitor to let me know his heartrate, breathing rate and all that, or a nurse that knows everything. But at the same time I AM SO EXCITED AND HAPPY AND I CANNOT WAIT!!! I hope I dont sound crazy to all of you... Other then that Travyn is doing FANTASTIC!! His counts are 400 which is OK. But they are coming back up pretty fast. I am so grateful for all the prayers that have been said for my liitle boy, and if you dont mind continuing to pray for him. He is such a little fighter and it is truly a MIRACLE that we are at this point where I can take him home. I will update you on how things are going at home. WISH ME LUCK !!!THANKS FOR ALL YOUR LOVE AND SUPPORT! I LOVE YOU ALL SO MUCH!!!!

Travyn's fundraiser 03/27/09

Thursday, April 9, 2009

My Home Away From Home.
Posted 19 hours ago
Hey everyone, sorry its been awhile since I have written an update. Wow, I have a story for you! After we were moved to the PICU I get a call from my Social Worker. She said that there was a chance I would have to pack up Travyn's stuff in his room on the forth floor. (and for those of you that knew how much stuff I had in this room you would laugh.) We have been in this particular room for 2 1/2 months and I pretty much made it a nursery. I had stuff all over the walls and it was so cute. I would have nurses from all over the hospital come in my room and say "I just had to come see your room!" "I've heard its the cutest room in the hospital" I think I went a little overboard with decorations. But it was SO cute and Travyn loved it :) Anyway, my socail worker said they were trying really hard to save our room but they might need it because Travyn is still in the PICU. I had no problem with the news. I understand that there are other sick kids. So I said "NO problem, Just let me know." Well 2 hours later I get a call and they needed Tray's room incase they got an admit in the middle of the night. So me and my Mom went upstairs while Tray was sleeping and we started packing. The worst part is that they didn't have anywhere I could store it, so I had to pack it in my car. It filled my front and back seat full. It took us 2 hours and about 5 trips downstairs to my car. They let us use the little kid wagons to pack stuff on which helped alot and save us time. so we get done moving and by that time it was 9:30 so we went and tucked Travyn in said our good nights. I went to my moms house to stay the night. I got a call at 12:00 saying that they needed Tray's PICU room and they were going to move us back upstairs to his old room that we just BARLY MOVED OUT OF. I was so upset!! I asked the charge nurse to please not move him until I got there in the morning. She kept saying she couldn't wait and they were going to move him. The reason why I was so mad was because I felt like the were shuffling my son around from room to room and his blood counts are zero. When chemo patients blood counts are zero they wont even let them out of there room incase they caught a virus. And taking Tray in the halls is very dangerous because of that reason. I was also upset cause they wouldn't listen to me. I honestly felt like I didn't have a voice. Well the charge nurse called me back and said "OK well we arent going to move him because his heartrate is very high and he is breathing alot harder and the Respitory Therapist is concerned" I thought that was strange cause all of a sudden there were all these concerns when he has been stable all day and doing so good. But oh well! What do you do?The next day they finally moved Tray back to the wonderful oncology floor. :) My home away from home!!! I absolutley LOVE the 4th (oncology) floor. I guess we have been spoiled up here or somthing but down in the PICU they treat you completly different. There communication skills are crummy and they are very unorganized. Thats just my opinion though, they do alot of good so I guess the good out ways the bad.Well since we've been back Travyn has done so good. He is starting to get his energy back and he is starting to play and grab everything again and we are just lovin it. His liver enzymes are in the 60's which is awesome!! They removed his tummy drain that was draining all the excess fluid in his tummy from the VOD- "Veno Occlusive Disease" They started his feeds back up yesterday. He is getting 8 mils an hour. He is handling them fine. They start him off at such a small amount because they dont want to make him sick and throw up. They up it 2 mils every hour. The goal is to get to 42 mils an hour. We'll get there! They are going to start weening him off the oxycodone. I am very happy about that! :) And now for the best news, They said I will be able TO TAKE TRAVYN HOME in a week or so. They want his blood counts to come up a little before they send us home. not to St. George but to the Ronald McDonald apartment. OH MY GOSH I am so excited!but it will only be for 1 week. But I dont care, Im just so happy I finally get to take my baby home and feel like a normal MOMMY again. What I mean by that is NO DOCS, NO NURSES (well I will have a home nurse once a day) AND I'll HAVE SOME PRIVACY!!!! YAY!! I CANNOT WAIT!!! Then when I bring him back they will start his 3rd cycle of chemo and we'll do it all over again but this time he's stronger. I believe he gets stronger and stronger everytime .. :D WOW, I truly have so much to be grateful for. My baby is healing up so well and getting bigger and better everyday. He is such a fighter!! I love him so much! I thank heavenly father everyday for all the miracles we have seen with Travyn. Travyn has NO IDEA how much he has impacted my life, my family, friends and people that just hear his story. I have never been so spiritual in my life or have felt so close to God. I want to thank you Travyn. Mommy loves you so much and im still by your side until you are "CANCER FREE" Thats the BIG prize and me and my family are focusing on it so hard!!! MY FAMILY ROCKS! I wouldn't be here if it wasn't for my beautiful mom and dad and I couldn't do this without my wonderful family AND GOD OFCOURSE!!

Friday, April 3, 2009

God Hears Us!
Posted 15 hours ago
Where do I begin! So we were moved back to the penthouse on Monday night. But it was short lived. Tuesday seemed to get a little harder for Travyn to breath due to the fluid in his belly pressing up against his lungs. They put an oxygen mask on him because his oxygen saturations were dropping severly. Respitory Therapy came in to assess him and to see if he was going to need a bigger and better breathing machine. They said his lung air bags were having a hard time inflating and deflating. So they brought in a oxygen machine that was very powerful. After a few hours they comtimplated whether or not they wanted him back in the PICU for closer watch. His oxygen sats were in the high 70's. That means he was taking 70 breaths per minute. wow!! Normal sats are in the 30's and 40's. They said that if his oxygen sats didn't improve then they were going to have to intibate him and put him on a breathing machine. So we packed up some baby cloths and blankie's and headed on down to the PICU once agian. I am sad to go down there but am grateful for the special care and attention. He is in good hands there. Everytime we leave the PICU they always say "We hope we dont see you agian down here" Because its the INTENSIVE CARE UNIT!!! Its a step backwards.Yesterday, he slept all day long. I didn't see my beautiful baby's eyes once. He was so sick and not feeling well at all. We just let him sleep for two days straight!!! His breathing was so labored yesterday and it was so hard to see him like this. His little chest sides were dimpling because he was breathing so hard and trying to gasp for air. :( The oxygen machine they had him on was blowing pure oxygen in his little nostrals so strong so that it would open and inflate his lung bags. Last night my baby was so sick and he was connected to so many machines and cords and it was hard to move him from his crib to my arms, so I just crawled right into his crib with him and cuddled with my sweet boy. Even though he was asleep he knew I was there and turned into my chest. It melted my heart. I even fell asleep and took a little napper with my sweet boy. Just like we use to do in my bed. I believe that it was so healing for Tray and myself. The nurses and Doctors that would walk by our room had to do a double take to make sure they were seeing what they were seeing, LOL I fit pretty darn good in his crib and I am going to do it more often. Tray loved it!!!My friends Les and Lora came up because they were in town from Hurricane. Les and my Dad gave Tray a beautiful blessing. (Thanks Les) The past couple days I have felt this calm spirit with me at all times. I feel gods arms wrapped around me. Its so comforting! I do feel like I have handled this whole situation really well and I know its because of all the prayers being said. Today has been a much better day. Travyn's oxygen sats have gone down into the 40's and his liver enzymes have gone from 1400 to 250. Do you know what this means??? This means his liver is healing on it own. He is not out of the woods yet but soon to be. He woke up today when I got in his crib and I handed him a raddle and he grabbed it and was PLAYING with it. We haven't seen that for a while. My family and I were so thrilled and happy that our boy is hanging tough and getting better everyday.I contribute his wonderful progress to one thing and that is the 'POWER OF EACH PRAYER THAT IS BEING SAID ON BEHALF OF MY BABY BOY' How can I ever possibly thank you all for your love, faith, support and your heart felt prayers. I am so grateful for everyday with my boy and I still can see the day when I am leaving the hospital and taking my little Travyn home to where he was born. I am focusing on the big prize "CANCER FREE" and let me just tell you, WE ARE GOING TO HAVE THE BIGGEST PARTY EVER WHEN THAT DAY COMES!!!I will have the Ringling Brothers Circus there!! Thats how big its gonna be! LOL :)
Miracles DO HAPPEN!! and we witnessed one today!! :)
Thanks for your love and support!! We love you so much!! Please keep praying for my lil fighter! God has heard your prayers and he is still listening!!! :) Jesus loves you all and Jesus loves Tray!!!
God is good.....NO..... GOD IS GREAT!!!!!